Health and wellness


Partnerships in Wellness (2017)

A health promotion curriculum that addresses the unique learning needs of adults with intellectual and/or developmental disabilities (IDD) who require ongoing daily supports, have limited readings skills, and would benefit from learning about improved nutrition and activity. *Partnerships in Wellness* was designed to be holistic addressing multiple aspects of well-being, with the belief that small changes done consistently can improve health for everyone. The curriculum takes a unique approach to teaching persons with IDD about healthy living: Persons with disabilities learn alongside a partner who does not have IDD. *Partnerships in Wellness* is structured in a way that both partners can learn new information, skills, and habits as it relates to their own health and well-being. (Publication Date: July 18, 2017)

Staff: Lynda L Anderson, Connie J Burkhart

Feature Issue on Supporting Wellness for Adults with Intellectual and Developmental Disabilities (Winter 2016)

A newsletter issue on supporting wellness for adults with intellectual and developmental disabilities. Wellness is a rapidly growing area of focus for people across the U.S. The popularity of health advice segments on TV news and talk shows, of high tech fitness tracking devices and apparel, and of stress management and meditation workshops are a few of the indicators of a growing interest in whole-person well-being. For individuals with intellectual and developmental disabilities, the benefits of attending to wellness are at least as great as those experienced by the rest of the population. But the opportunities to access wellness activities and resources are not necessarily as available. This *Impact* issue presents wellness as touching all areas of life for individuals with disabilities - physical, social, vocational, spiritual, emotional, psychological - with choice-making and inclusion as keys. It offers ways in which disability service providers, health and wellness professionals, community fitness and recreation programs, employers, advocates, individuals with disabilities, and their families can help ensure that opportunities to choose and engage in wellness activities are as available to individuals with disabilities as to anyone else. And it shares examples of those leading the way in supporting attention to life areas that are essential to everyone's well-being - healthy activity, social connections, pleasure and meaning, supportive relationships, and participation in health care. (Publication Date: March 07, 2016)

Staff: Vicki D Gaylord, Lynda L Anderson

Work is Worth the Risk: Balancing Opportunity and Safety (#4) (2016)

A video acknowledging that balancing health and safety with successful employment activities is not always easy. Incorporating accommodations and customizing work tasks and settings is critical in reducing risk for the employee and for the employer. The target audiences are self-advocates, parents, educators, providers, Direct Support staff, county case managers, and assessors. (Publication Date: March 02, 2016)

Staff: Kelly Nye-Lengerman LGSW

Health and Wellness for people with intellectual and developmental disabilities (2016)

A video and an [accompanying brief]( outlining health and Wellness for people with intellectual and developmental disabilities. A researcher provides a short presentation. (Publication Date: March 01, 2016)

Staff: Jerry W Smith

State of the Science: Theories, Concepts, and Evidence Guiding Policy and Practice in Community Living and Participation for People with Intellectual Disabilities (2013)

A set of online video presentations from the July 2012 conference, State of the Science: Outcomes for People with Intellectual and Developmental Disabilities in Halifax, Nova Scotia. Experts in their fields discuss the most influential theories, principles, and "big ideas" that shape policy and practices in community supports for people with intellectual or developmental disabilities around 9 topical areas: 1. Community participation and social inclusion 2. Employment and economic self-sufficiency 3. Family support 4. Health and wellness 5. Methodological issues 6. Outcome data 7. Predictors of outcomes 8. Quality of life indicators 9. Self-determination The videos also include discussions by self-advocates and other stakeholders on many of the topics. (Publication Date: June 03, 2013)

Staff: Kristin Dean, Shawn C Lawler, Jerry W Smith

Self-Advocacy Online (2012-Present)

A multimedia resource providing information important to people with intellectual and developmental disabilities that is accessible to all. The content is translated into understandable language and includes videos, interactive lessons, and engaging graphics. Users can: * Explore lesson modules on key topics in self-advocacy. * Learn about research findings that are important to people with disabilities in an accessible format. * View stories from other self-advocates and hear what they have to say about key topics in self-advocacy. * List self-advocacy groups and find self-advocacy groups across the United States. (Publication Date: June 01, 2012)

Staff: John D Westerman, Shawn C Lawler, Mark R Olson, Jerry W Smith, John G Smith, Connie J Burkhart

Collaborators: The Arc of the United States

Feature Issue on Supporting the Social Well-Being of Children and Youth with Disabilities (Spring/Summer 2011)

A newsletter issue presenting practical and insightful articles about supporting the social well-being of children and youth with intellectual, developmental and other disabilities in the settings where they live their lives: schools, youth programs, neighborhoods, communities, homes. Social well-being is essential to overall health and quality of life for all children and youth. However, children and youth with disabilities are often at higher risk for experiencing lower levels of social, and related emotional, well-being than their peers without disabilities. They are among those more likely to be bullied and harassed, have a small number of friends outside their families, and participate in few extracurricular activities. This means that the adults in their lives need to be proactive in supporting and strengthening the social well-being of these young people. This *Impact* issue focuses on what adults can do to create and sustain environments that contribute to social well-being, rather than social harm, for young people with disabilities and their peers without disabilities. It includes personal stories of young people, their families and friends; practical strategies for school and community settings; research summaries and profiles of successful programs; and resources for use by educators, families, youth leaders, and others who desire to support the social growth and well-being of all our young people. (Publication Date: August 12, 2011)

Staff: Vicki D Gaylord, Brian H Abery

Feature Issue on Sexuality and People with Intellectual, Developmental and Other Disabilities (Spring/Summer 2010)

A newsletter issue exploring the question "What does it mean to affirm and support a positive, healthy sexuality for individuals with disabilities?" Its articles cover topics ranging from sexuality education in the home and school, to personal stories of dating and marriage, to legal and ethical issues for staff and agencies providing services for people with disabilities. The goal of this issue is to provide information and inspiration that further support the right and opportunity for people with intellectual, developmental, and other disabilities to understand and express this essential dimension of human life. (Publication Date: September 01, 2010)

Staff: Vicki D Gaylord

Characteristics of Aging Caregivers in the NHIS-D (July 2006)

A brief summarizing findings from the National Health Interview Survey Disability Supplement conducted by the U.S. Bureau of the Census, National Center on Health Statistics in 1994 and 1995. It examines characteristics and outcomes for family members, ages 55 and older, who shared households with persons with intellectual and/or developmental disabilities (ID/DD) or functional limitations only (FL Only). This brief estimates the population of aging caregivers and presents logistic regressions examining the factors that influence selected outcomes for those caregivers (poor health status and poor mental health status). (Publication Date: July 01, 2006)

Staff: Lynda L Anderson, Sheryl A Larson

Quality Mall (2004 - Present)

An interactive database providing an online clearinghouse of over 3,500 resources from around the country related to person-centered services and supports for persons with intellectual and developmental disabilities. For use by individuals with disabilities, families, advocates, government officials, and service providers, it covers a wide variety of topical areas related to community participation and inclusion, and quality of life. Quality Mall is managed by the Institute's Research and Training Center on Community Living. (Publication Date: January 01, 2004)

Staff: Claire Cunningham, Jerry W Smith, Julie E Dahlof Kramme, John G Smith

Feature Issue on Violence Against Women with Developmental or Other Disabilities (Fall 2000)

A newsletter issue examining violence as it impacts women with developmental and other disabilities - what we know, what we don't know, and what needs to be done to prevent it and to help women recover from it. A major civil rights, quality of life, and health issue for women with developmental and other disabilities is the presence of violence in their lives. Women with disabilities experience the highest rate of personal violence - violence at the hands of spouses, partners, boyfriends, family members, caregivers, and strangers - of any group in our society today. Yet, they are often invisible in the crime statistics, frequently find community services such as domestic and sexual violence programs inadequately prepared to fully understand and meet their needs, face disability service systems that don't clearly see and effectively respond to the violence, and are all too commonly devalued and unsupported because of societal prejudice. This *Impact* offers strategies and ideas for bringing together disability service providers, sexual and domestic violence programs, law enforcement and the justice system, policymakers, researchers, and women with disabilities to address these issues, in the hope that this epidemic will soon end. (Publication Date: December 01, 2000)

Staff: Vicki D Gaylord, Wendie H Abramson