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Feature Issue on the Justice System and People with Intellectual, Developmental, and Other Disabilities (Spring 2017)

An issue in the *Impact* series that discusses the unique and serious challenges people with intellectual, developmental, and other disabilities often face when involved with the juvenile and criminal justice systems. Justice professionals - as well as disability professionals, people with disabilities, and their families - will find this issue of *Impact* filled with leading-edge articles that help them work together to address those challenges and support equal access to justice for all. (Publication Date: June 23, 2017)

Staff: Vicki D Gaylord, David R Johnson PhD

Valuing Lives: Wolf Wolfensberger and the Principle of Normalization (2016)

A film documenting the social paradigm shift triggered by Wolf Wolfensberger, a professor and change agent who, in the early 1970s, popularized and expanded the principle of normalization of people with disabilities into a framework for community inclusion. People are often judged according to how they conform to commonly-held beliefs of what is normal - normal appearance, behavior, ability. And those deemed "abnormal" can be considered undeserving of common respect, dignity, and even basic rights. For many with intellectual and developmental disabilities, this has meant segregation, isolation, and exclusion, with little or no opportunity to access the good things in life. Through archival images and footage, and dozens of interviews, *Valuing Lives* explores the principle of normalization, an idea originating in Scandinavia that challenged fundamental assumptions about people with intellectual disabilities, and the iconoclastic professor whose writings and intense workshops trained thousands of human services professionals in the theory and practice of this idea. This brought about a sea change in thinking at a time when it was considered normal to warehouse nearly 200,000 Americans with intellectual disabilities in large institutions. Wolfensberger helped change the conversation from institutional reform to rethinking society's assumptions of disability and the role of human services. There are still institutions for people with intellectual disabilities, and some voices are calling for new, segregated communities where, it is believed, they will be safer "with their own kind." It is time for a new generation of leaders to rediscover the principle of normalization. (Publication Date: April 05, 2016)

Staff: Jerry W Smith

Collaborators: Institute on Disabilities, Temple University [Philadelphia, PA]

Aging, Retirement, and End of Life for people with intellectual and developmental disabilities (2016)

A pair of videos and an [accompanying brief](http://rtc.umn.edu/nationalgoals/docs/Aging_and_People_with_IDD.pdf) outlining aging issues and people with intellectual and developmental disabilities. A researcher and a self-advocate both provide short presentations. (Publication Date: March 01, 2016)

Staff: Jerry W Smith

The U.N. Convention on The Rights of Persons with Disabilities (CRPD): A Status Report (2015)

A brief reviewing which countries have signed and/or ratified the United Nations (U.N.) Convention on The Rights of Persons with Disabilities (CRPD). About 10% of the world's population lives with a disability. Unfortunately, many countries lack comprehensive legislation to protect the rights of people with disabilities. In response, the CRPD was negotiated at the U.N. over several years, adopted in 2006, opened for signature by all countries and regional integration organizations in 2007, and commenced in 2008. A country's ratification of the CRPD affirms the country's belief that persons with disabilities have fundamental rights that must be protected, supported, and reinforced (U.N., 2007). As of July 2014, there are 159 signatories and 156 ratifications and accessions to the CRPD. While the United States is a signatory to the CRPD, the country has not ratified the convention. Many countries have either ratified or signed the CRPD, but political instability in a few countries has resulted in inaction. (Publication Date: September 14, 2015)

Services for People with Intellectual and/or Developmental Disabilities in the U.S. Territories (May 2015)

A report representing an expansion of the data collection activities mandated by a 2012 Administration of Intellectual and Developmental Disabilities (AIDD) Funding Opportunity Announcement (FOA). Prior to 2012, the AIDD funded data projects, Access to Integrated Employment, Family and Individual Information Systems project (FISP), Residential Information Systems Project (RISP) and the State of the States in Developmental Disabilities only collected data from the 50 states and the District of Columbia. The 2012 FOA requested that three of the AIDD data projects work together to include the five U.S. Territories (American Samoa and the Commonwealth of the Northern Marianas Islands, Guam, Puerto Rico and the Virgin Islands) in their data collection and analysis efforts. This summary represents the first step to describe the services for people with intellectual and developmental disabilities and their families in the territories. While the information may have limitations in the comparability to the rest of the nation, AIDD believes that it is important to begin data collection, tracking and analysis to increase opportunities to improve self-determination, independence, productivity, integration and inclusion of people with IDD into their communities in the U.S. Territories. (Publication Date: May 01, 2015)

Collaborators: Institute for Community Inclusion, University of Massachusetts Boston, Research and Training Center on Community Living, State of the States in Developmental Disabilities

Feature Issue on the ADA and People with Intellectual, Developmental, and Other Disabilities (Winter 2015)

A newsletter issue marking the 25th anniversary of the Americans with Disabilities Act (ADA). In this *Impact* are articles by individuals with disabilities, families, advocates, service providers, researchers, and others talking about how the ADA has made a difference in their lives, the lives of their loved ones, and in our nation. At the same time, this *Impact* also focuses on ways in which the ADA hasn't fully addressed a number of the barriers faced by people with intellectual and developmental disabilities as they seek equal opportunity and inclusion in their communities. By sharing this range of perspectives, the issue encourages readers to both pause to celebrate the anniversary of the ADA as a turning point in our nation's journey, and continue traveling toward that horizon of full inclusion we have yet to reach. Complementing the *Impact* are over 40 short video clips posted on the Self-Advocacy Online Web site [(http://www.selfadvocacyonline.org/stories)](http://www.selfadvocacyonline.org/stories) of the Research and Training Center on Community Living in which people with disabilities talk about the importance and meaning of the ADA for them. (Publication Date: March 26, 2015)

Staff: Vicki D Gaylord, Amy S Hewitt, Clifford L Poetz

Active Support: People Fully Engaged in Life (2014)

A DVD providing an overview of Active Support -- how it is implemented and the kind of training involved to make it successful. Active Support is an organizational intervention that enables Direct Support Professionals in community settings to effectively support the engagement of persons with intellectual or developmental disabilities (ID/DD) throughout their day and in their communities. The DVD includes a long version (24:12) and short version (5:30) of the program. Both programs are closed captioned. (Publication Date: September 04, 2014)

Staff: Jerry W Smith

Collaborators: University of Sydney [Australia], Deakin University [Australia]

Social Capital (May 2014)

A newsletter issue for Direct Support Professionals (DSPs) exploring the importance of social capital in the lives of the people they support. Social capital is the value a person gets from participating in social networks, such as families, friends, school, work, and faith-based organizations. Involvement of people with disabilities in social networks also brings value to the community. Integrated communities provider richer experiences for all. These networks help people find jobs, homes, transportation, advisors, volunteer opportunities, and confidants. Individuals with developmental disabilities often have small social networks and limited opportunities to gain social capital, but families and DSPs understand this problem and this issue of *Frontline Initiative* may help solve it. (Publication Date: May 13, 2014)

Staff: Connie J Burkhart

Feature Issue on Stories of Advocacy, Stories of Change from People with Disabilities, Their Families, and Allies (1988-2013) (2014)

A newsletter issue featuring then-and-now personal stories from individuals with disabilities, their families, and allies that provide a snapshot of how the disability rights movement has touched individual lives over the past 25 years. This 25th anniversary issue of *Impact* brings together personal stories published in its pages between 1988-2010, and pairs them with new stories from those same individuals and families that bring readers up-to-date on their lives today. Through these stories, plus an interview with the Institute's founding director Bob Bruininks, this *Impact* recognizes the tenacity, courage, and vision of those working to bring about progress toward full citizenship and community inclusion for people with disabilities in the U.S. (Publication Date: May 09, 2014)

Staff: Vicki D Gaylord

State of the Science: Theories, Concepts, and Evidence Guiding Policy and Practice in Community Living and Participation for People with Intellectual Disabilities (2013)

A set of online video presentations from the July 2012 conference, State of the Science: Outcomes for People with Intellectual and Developmental Disabilities in Halifax, Nova Scotia. Experts in their fields discuss the most influential theories, principles, and "big ideas" that shape policy and practices in community supports for people with intellectual or developmental disabilities around 9 topical areas: 1. Community participation and social inclusion 2. Employment and economic self-sufficiency 3. Family support 4. Health and wellness 5. Methodological issues 6. Outcome data 7. Predictors of outcomes 8. Quality of life indicators 9. Self-determination The videos also include discussions by self-advocates and other stakeholders on many of the topics. (Publication Date: June 03, 2013)

Staff: Kristin Dean, Shawn C Lawler, Jerry W Smith

Later Life Supports (2012)

A newsletter issue for Direct Support Professionals providing a variety of perspectives related to effectively supporting people with intellectual and developmental disabilities (I/DD) in later life. (Publication Date: December 01, 2012)

Collaborators: National Alliance for Direct Support Professionals

Self-Advocacy Online (2012-Present)

A multimedia resource providing information important to people with intellectual and developmental disabilities that is accessible to all. The content is translated into understandable language and includes videos, interactive lessons, and engaging graphics. Users can: * Explore lesson modules on key topics in self-advocacy. * Learn about research findings that are important to people with disabilities in an accessible format. * View stories from other self-advocates and hear what they have to say about key topics in self-advocacy. * List self-advocacy groups and find self-advocacy groups across the United States. (Publication Date: June 01, 2012)

Staff: John D Westerman, Shawn C Lawler, Mark R Olson, Jerry W Smith, John G Smith, Connie J Burkhart

Collaborators: The Arc of the United States

Staff Recruitment, Retention, & Training Strategies for Community Human Services Organizations (2012)

A 15-chapter textbook and how-to-guide helping organizations to select and implement strategies that address the challenges of recruiting, retaining, and training Direct Support Professionals. (Publication Date: January 01, 2012)

Staff: Amy S Hewitt, Sheryl A Larson

Feature Issue on Aging and People with Intellectual and Developmental Disabilities (Winter 2010)

A newsletter issue exploring the question, "What can be done today to support people with intellectual and developmental disabilities who are aging?" Its articles give a variety of responses to the question. Self-advocates talk about the importance of having opportunities to be active participants in their communities, to be listened to as they speak up for themselves, and to continue to pursue their own goals and dreams for their lives. Siblings assert the necessity to respond to the concerns that keep them awake at night as they deal with the aging of all their family members, including parents who may have been primary caregivers for their brothers or sisters with disabilities. Researchers discuss the policy and service issues that need to be addressed as the number of adults with intellectual and developmental disabilities over 60 years of age is projected to grow to 1.2 million in the next 20 years. And practitioners describe some of the promising approaches to ensuring quality service and supports that address the physical, social, emotional, and spiritual dimensions of aging with intellectual and developmental disabilities. (Publication Date: March 01, 2010)

Staff: Vicki D Gaylord

RTC Media website (2015)

A website showcasing films about people with disabilities and those who provide support. Also describes the film-making services available through RTC Media. (Publication Date: January 01, 2010)

Staff: Jerry W Smith

An Independent Assessment of the Region 10 Quality Assurance Commission Voice Review Program (2008)

A report on the VOICE program, a person-centered quality assurance system that emphasizes self-determination and involves community volunteers, people with disabilities, and professionals to determine the quality of services provided. VOICE was created by the Region 10 Quality Assurance Commission in southeast Minnesota. (Publication Date: April 16, 2008)

Staff: Jerry W Smith, John G Smith

Characteristics of Aging Caregivers in the NHIS-D (July 2006)

A brief summarizing findings from the National Health Interview Survey Disability Supplement conducted by the U.S. Bureau of the Census, National Center on Health Statistics in 1994 and 1995. It examines characteristics and outcomes for family members, ages 55 and older, who shared households with persons with intellectual and/or developmental disabilities (ID/DD) or functional limitations only (FL Only). This brief estimates the population of aging caregivers and presents logistic regressions examining the factors that influence selected outcomes for those caregivers (poor health status and poor mental health status). (Publication Date: July 01, 2006)

Staff: Lynda L Anderson, Sheryl A Larson

Status of Institutional Closure Efforts in 2005 (September 2005)

A brief examining and summarizing the research and policy issues that state policymakers may face as they consider whether to increase, reduce, or close institutions in their own states. (Publication Date: September 01, 2005)

Staff: Pamela M Walker, Sheryl A Larson

Social Activities of Non-Institutionalized Adults in the NHIS-D: Gender, Age, and Disability Differences (September 2005)

A follow-up brief to issue 3(1) describing the social activities of adults with intellectual and/or developmental disabilities (ID/DD) using the National Health Interview Survey Disability Supplement(NHIS-D). The main finding of that earlier brief was that the most common social activities for individuals with ID/DD were getting together with friends or neighbors, meeting relatives, and talking on the phone with friends or neighbors. This DD Data Brief takes the next step by comparing social activities of adults with ID/DD to those of adults with other types of disabilities. It also uses inferential statistics to identify factors (including work history) associated with differences in social activity participation. (Publication Date: September 01, 2005)

Staff: Sheryl A Larson

Aging (2004)

A newsletter issue for Direct Support Professionals offering various perspectives on effectively supporting individuals with disabilities who are getting older. (Publication Date: December 01, 2004)

Staff: Amy S Hewitt, Nancy J McCulloh

Collaborators: National Alliance for Direct Support Professionals

Quality Mall (2004 - Present)

An interactive database providing an online clearinghouse of over 3,500 resources from around the country related to person-centered services and supports for persons with intellectual and developmental disabilities. For use by individuals with disabilities, families, advocates, government officials, and service providers, it covers a wide variety of topical areas related to community participation and inclusion, and quality of life. Quality Mall is managed by the Institute's Research and Training Center on Community Living. (Publication Date: January 01, 2004)

Staff: Claire Cunningham, Angela N Amado, Jerry W Smith, Julie E Dahlof Kramme, John G Smith