Adults

Products

Residential Information Systems Project Annual Report: Status and Trends Through 2015 (2017)

A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2015. It is based on an annual nationwide survey of directors of state intellectual and developmental disability agencies and large state residential facilities conducted by the National Residential Information Systems Project (RISP) at the Research and Training Center on Community Living. The report presents data on individualized and congregate settings, utilization and expenditures for Medicaid's Home and Community-Based Waiver (HCBS) and Medicaid's Intermediate Care Facilities for Individuals with Intellectual Disabilities program, national longitudinal trends in the utilization of and expenditures for long-term services and supports, and services and supports provided in state-operated facilities serving 16 or more people with intellectual and developmental disabilities. (Publication Date: December 01, 2017)

Staff: Lynda L Anderson, Amy S Hewitt, Heidi Eschenbacher, Sheryl A Larson, Sandra L Pettingell

Choice, Direction, and Control (2017)

A newsletter issue for Direct Support Professionals (DSPs) encouraging the people they support to exercise choice, direction, and control over their lives. DSPs also support people who have relationships with guardians or who utilize supported decision-making. This issue of *Frontline Initiative* includes important, accessible information for DSPs on these topics. (Publication Date: November 27, 2017)

Staff: Claire E Benway, Julie E Dahlof Kramme, Connie J Burkhart

State of the States in Self-Direction for Individuals with Intellectual and Developmental Disabilities (2015) (2017)

A brief describing how self-directed long-term services and supports (LTSS) are currently implemented in the United States. Self-direction provides individuals with intellectual and/or developmental disabilities (IDD) and/or their families the opportunity to direct and manage their supports. Over the past decade, states across the U.S. have transitioned from pilot projects to statewide implementations, reaching tens of thousands of new participants. (Publication Date: July 11, 2017)

Staff: Amy S Hewitt, Jennifer A Hall-Lande, Matthew DeCarlo

Collaborators: Radford University School of Social Work, Virginia Commonwealth University School of Social Work

ANCOR/RTC Realistic Job Preview (2017)

A video illustrating the real, everyday work of direct support professionals (DSPs) in the field of developmental disabilities. This job preview is a DSP recruitment strategy designed to give potential employees detailed and balanced information about job expectations, the employer, and the worksite, so they can make an informed decision about accepting a job offer from the employer. A realistic job preview provides both positive and negative information that potential staff are unlikely to know. DSPs profiled in the video offer first-person advice about this important career choice in the following areas: On the Job, Rewards of Direct Support, Challenges of Direct Support, Qualities of a Great DSP, and Lessons Learned. The video is available through licensing for agencies that wish to incorporate it into their online training for staff. The fee for viewing the video is based upon the size of the client organization, which determines the number of authorized views. For information about agency licensing for Web use, send an email to [smith495@umn.edu](mailto:smith495@umn.edu). You can also [find more information about the video here](http://www.nationaladvocacycampaign.org/direct-support-realistic-job-preview). (Publication Date: June 27, 2017)

Staff: Jerry W Smith

Feature Issue on the Justice System and People with Intellectual, Developmental, and Other Disabilities (Spring 2017)

An issue in the *Impact* series that discusses the unique and serious challenges people with intellectual, developmental, and other disabilities often face when involved with the juvenile and criminal justice systems. Justice professionals - as well as disability professionals, people with disabilities, and their families - will find this issue of *Impact* filled with leading-edge articles that help them work together to address those challenges and support equal access to justice for all. (Publication Date: June 23, 2017)

Staff: Shawn C Lawler, Vicki D Gaylord, Sarah L Hollerich, Jonathon P Walz, David R Johnson PhD

In-Home and Residential Long-Term Supports and Services for Persons with Intellectual or Developmental Disabilities: Status and Trends through 2014 (2017)

A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2014. It is based on an annual nationwide survey of directors of state intellectual and developmental disability agencies and large state residential facilities conducted by the National Residential Information Systems Project (RISP) at the Research and Training Center on Community Living. The report presents data on individualized and congregate settings, utilization and expenditures for Medicaid's Home and Community-Based Waiver (HCBS) and Medicaid's Intermediate Care Facilities for Individuals with Intellectual Disabilities program, national longitudinal trends in the utilization of and expenditures for long-term services and supports, and services and supports provided in state-operated facilities serving 16 or more people with intellectual and developmental disabilities. (Publication Date: April 25, 2017)

Staff: Libby J Hallas-Muchow, Lynda L Anderson, Amy S Hewitt, Faythe Aiken, Heidi Eschenbacher, Sarah E MapelLentz, Sarah L Hollerich, Sheryl A Larson, Sandra L Pettingell

Person-Centered Practices (2017)

A newsletter issue for Direct Support Professionals (DSPs) exploring person-centered practices. This issue of *Frontline Initiative* brought together voices on what has been happening in this work around the country. Person-Centered Thinking is a dynamic skill that considers how a person truly wants to direct their lives. People who receive services are often expected to conform and fit into routines and procedures set up by service providers or caregivers. But current service standards, which include state and federal requirements, are providing more room for person-centered practices. Person-centered practices are at the forefront as services shift away from a system-centered focus. (Publication Date: April 21, 2017)

Staff: Claire E Benway, Julie E Dahlof Kramme, Connie J Burkhart

Valuing Lives: Wolf Wolfensberger and the Principle of Normalization (2016)

A film documenting the social paradigm shift triggered by Wolf Wolfensberger, a professor and change agent who, in the early 1970s, popularized and expanded the principle of normalization of people with disabilities into a framework for community inclusion. People are often judged according to how they conform to commonly-held beliefs of what is normal - normal appearance, behavior, ability. And those deemed "abnormal" can be considered undeserving of common respect, dignity, and even basic rights. For many with intellectual and developmental disabilities, this has meant segregation, isolation, and exclusion, with little or no opportunity to access the good things in life. Through archival images and footage, and dozens of interviews, *Valuing Lives* explores the principle of normalization, an idea originating in Scandinavia that challenged fundamental assumptions about people with intellectual disabilities, and the iconoclastic professor whose writings and intense workshops trained thousands of human services professionals in the theory and practice of this idea. This brought about a sea change in thinking at a time when it was considered normal to warehouse nearly 200,000 Americans with intellectual disabilities in large institutions. Wolfensberger helped change the conversation from institutional reform to rethinking society's assumptions of disability and the role of human services. There are still institutions for people with intellectual disabilities, and some voices are calling for new, segregated communities where, it is believed, they will be safer "with their own kind." It is time for a new generation of leaders to rediscover the principle of normalization. (Publication Date: April 05, 2016)

Staff: Jerry W Smith

Collaborators: Institute on Disabilities, Temple University [Philadelphia, PA]

I Choose Employment (#1) (2016)

A video designed to raise expectations for full workforce participation - that work can be a reality for anyone. The target audiences are self-advocates and families. (Publication Date: March 02, 2016)

Staff: Kelly Nye-Lengerman LGSW, Jerry W Smith

Employment Policy: How Does That Work? (#2) (2016)

A video following a question-and-answer format, in plain and simple language from self-advocates and policy staff about changes in employment policy and services. The target audiences are self-advocates and families. (Publication Date: March 02, 2016)

Staff: Kelly Nye-Lengerman LGSW, Jerry W Smith

Using the Language of Raised Expectations (#3) (2016)

A video emphasizing the power of words, especially where they relate to how employment is defined, addressed, and communicated. The target audiences are self-advocates, parents, educators, providers, Direct Support staff, county case managers, and assessors. (Publication Date: March 02, 2016)

Staff: Kelly Nye-Lengerman LGSW, Jerry W Smith

Work is Worth the Risk: Balancing Opportunity and Safety (#4) (2016)

A video acknowledging that balancing health and safety with successful employment activities is not always easy. Incorporating accommodations and customizing work tasks and settings is critical in reducing risk for the employee and for the employer. The target audiences are self-advocates, parents, educators, providers, Direct Support staff, county case managers, and assessors. (Publication Date: March 02, 2016)

Staff: Kelly Nye-Lengerman LGSW, Jerry W Smith

Trauma-Informed Care (2015)

A newsletter issue for Direct Support Professionals (DSPs) exploring trauma-informed care. This issue of *Frontline Initiative* provides background information on trauma-informed care and offers DSPs specific ways to provide positive, trauma-informed supports. All people can experience trauma; traumatic experiences can make a person feel threatened and can have lasting effects on a person's life. Trauma-informed care is an approach that affirms the lasting impact that traumatic experiences can have on people's lives, and how those experiences can impact a person's present actions. Trauma-informed care takes a thoughtful approach about these experiences. It is proactive in providing support that helps prevent further crises. (Publication Date: December 22, 2015)

Staff: Julie E Dahlof Kramme, Connie J Burkhart

Of the Community: Eight Stories of Community Living, Participation, and Inclusion (2015)

A film telling the stories of eight individuals with disabilities who have vibrant lives in which they live and participate in their communities in the ways they choose. Their stories illustrate the power of respect, imagination, flexibility, high expectations, and commitment to providing truly individualized, person-centered supports. Those have been found to be the keys to supporting people with intellectual and developmental disabilities to be truly *in* and *of* their communities. Their stories may be personal, but they reflect decades of social progress and ongoing challenges. Forty years ago, large institutions that warehoused thousands of people with disabilities were common. Today, most people with intellectual and developmental disabilities in the U.S. live in their communities with their families, in group homes, or in houses and apartments with needed supports. However, while many live *in* their communities, they are not *of* their communities. This is, in part, because of institutional mindsets that are present in many community group homes and other services in the U.S. In addition, there are efforts resurfacing to build new segregated institutions in spite of decades of research showing that people with intellectual and developmental disabilities have happier, healthier, and more productive lives when they live in smaller community homes with individualized supports and services. Today, people with disabilities expect to live where and with whom they choose, work in real jobs with real wages, be connected with family and friends in deep personal relationships, practice faith if and as they choose, grow through lifelong learning, explore personal interests, experience physical and emotional well-being, have choices, take risks, and accept the responsibilities of citizenship. (Publication Date: October 01, 2015)

Staff: Jerry W Smith

The U.N. Convention on The Rights of Persons with Disabilities (CRPD): A Status Report (2015)

A brief reviewing which countries have signed and/or ratified the United Nations (U.N.) Convention on The Rights of Persons with Disabilities (CRPD). About 10% of the world's population lives with a disability. Unfortunately, many countries lack comprehensive legislation to protect the rights of people with disabilities. In response, the CRPD was negotiated at the U.N. over several years, adopted in 2006, opened for signature by all countries and regional integration organizations in 2007, and commenced in 2008. A country's ratification of the CRPD affirms the country's belief that persons with disabilities have fundamental rights that must be protected, supported, and reinforced (U.N., 2007). As of July 2014, there are 159 signatories and 156 ratifications and accessions to the CRPD. While the United States is a signatory to the CRPD, the country has not ratified the convention. Many countries have either ratified or signed the CRPD, but political instability in a few countries has resulted in inaction. (Publication Date: September 14, 2015)

Services for People with Intellectual and/or Developmental Disabilities in the U.S. Territories (May 2015)

A report representing an expansion of the data collection activities mandated by a 2012 Administration of Intellectual and Developmental Disabilities (AIDD) Funding Opportunity Announcement (FOA). Prior to 2012, the AIDD funded data projects, Access to Integrated Employment, Family and Individual Information Systems project (FISP), Residential Information Systems Project (RISP) and the State of the States in Developmental Disabilities only collected data from the 50 states and the District of Columbia. The 2012 FOA requested that three of the AIDD data projects work together to include the five U.S. Territories (American Samoa and the Commonwealth of the Northern Marianas Islands, Guam, Puerto Rico and the Virgin Islands) in their data collection and analysis efforts. This summary represents the first step to describe the services for people with intellectual and developmental disabilities and their families in the territories. While the information may have limitations in the comparability to the rest of the nation, AIDD believes that it is important to begin data collection, tracking and analysis to increase opportunities to improve self-determination, independence, productivity, integration and inclusion of people with IDD into their communities in the U.S. Territories. (Publication Date: May 01, 2015)

Collaborators: Institute for Community Inclusion, University of Massachusetts Boston, Research and Training Center on Community Living, State of the States in Developmental Disabilities

Feature Issue on the ADA and People with Intellectual, Developmental, and Other Disabilities (Winter 2015)

A newsletter issue marking the 25th anniversary of the Americans with Disabilities Act (ADA). In this *Impact* are articles by individuals with disabilities, families, advocates, service providers, researchers, and others talking about how the ADA has made a difference in their lives, the lives of their loved ones, and in our nation. At the same time, this *Impact* also focuses on ways in which the ADA hasn't fully addressed a number of the barriers faced by people with intellectual and developmental disabilities as they seek equal opportunity and inclusion in their communities. By sharing this range of perspectives, the issue encourages readers to both pause to celebrate the anniversary of the ADA as a turning point in our nation's journey, and continue traveling toward that horizon of full inclusion we have yet to reach. Complementing the *Impact* are over 40 short video clips posted on the Self-Advocacy Online Web site [(http://www.selfadvocacyonline.org/stories)](http://www.selfadvocacyonline.org/stories) of the Research and Training Center on Community Living in which people with disabilities talk about the importance and meaning of the ADA for them. (Publication Date: March 26, 2015)

Staff: Vicki D Gaylord, Amy S Hewitt, Clifford L Poetz

Employment for People with Disabilities in Poverty: A Need for National Attention (February 2015)

A brief investigating poverty and disability. The second in a series, the purpose of this brief is to provide an in-depth national and state understanding about poverty and disability by investigating how people with disabilities in poverty fare in the labor force and employment, compared to those without disabilities. Using an array of online, interactive visual features, it also provides a series of state-specific infographic tools that can be used in advocacy and educational efforts. (Publication Date: February 17, 2015)

Staff: Kelly Nye-Lengerman LGSW

Understanding Community Poverty, Housing, and Disability (October 2014)

A brief aiming to provide policy makers, advocates, and researchers a tool to better understand the pervasiveness of poverty affecting people with disabilities, both locally and across the nation. By providing detailed comparisons across every county in the nation using an array of online, interactive visual features, the impact of poverty on people with and without disabilities is detailed in meaningful ways, especially the relationship between poverty and housing. Among the findings, the brief shows that poverty affects people with disabilities at much higher rates across the vast majority of U.S. counties, and these poverty rates have a direct relationship with local housing indicators (Publication Date: October 01, 2014)

Staff: Kelly Nye-Lengerman LGSW

Supporting Individuals with Intellectual or Developmental Disabilities and their Families: Status and Trends Through 2012 (2014)

A technical report describing results from a survey of state intellectual and developmental disabilities (IDD) agencies for FY 2012 on the status and trends of long-term supports and services for people with IDD that focuses on supports provided in individualized settings (the home of a family member, a person's own home, a host home or foster family setting or group homes shared by three or fewer people with IDD). (Publication Date: September 11, 2014)

Staff: Libby J Hallas-Muchow, Lynda L Anderson, Amy S Hewitt, John Agosta, Faythe Aiken, Yoshiko Kardell, Sheryl A Larson, Sandra L Pettingell

Active Support: People Fully Engaged in Life (2014)

A DVD providing an overview of Active Support -- how it is implemented and the kind of training involved to make it successful. Active Support is an organizational intervention that enables Direct Support Professionals in community settings to effectively support the engagement of persons with intellectual or developmental disabilities (ID/DD) throughout their day and in their communities. The DVD includes a long version (24:12) and short version (5:30) of the program. Both programs are closed captioned. (Publication Date: September 04, 2014)

Staff: Jerry W Smith

Collaborators: University of Sydney [Australia], Deakin University [Australia]

Residential Setting and Individual Outcomes: An Assessment of Existing National Core Indicators Research (July 2014)

A brief providing states with information to help their new policy and service developments comply with regulatory criteria that the Centers for Medicaid and Medicare Services specified in March 2014 regarding the character and location of residential services for recipients of Home and Community-Based Services waivers and state plan services. States must evaluate existing services to ensure such programs afford individuals with disabilities the same access to the community as persons without disabilities. This *Policy Research Brief* investigates the relationship of residential setting and individual outcomes for people with intellectual and developmental disabilities who use public programs by analyzing the findings of all peer reviewed studies using the National Core Indictors, a state system-level performance and outcome research program. Findings show that, overall, people living in smaller settings, such as their own home, a family or foster home, or small agency home experienced better individual outcomes than those living in larger settings. This brief displays those findings using an array of online, interactive visual features. A PDF version of each section of the brief is available from a link at the end of the relevant Web page. (Publication Date: July 01, 2014)

Social Capital (May 2014)

A newsletter issue for Direct Support Professionals (DSPs) exploring the importance of social capital in the lives of the people they support. Social capital is the value a person gets from participating in social networks, such as families, friends, school, work, and faith-based organizations. Involvement of people with disabilities in social networks also brings value to the community. Integrated communities provider richer experiences for all. These networks help people find jobs, homes, transportation, advisors, volunteer opportunities, and confidants. Individuals with developmental disabilities often have small social networks and limited opportunities to gain social capital, but families and DSPs understand this problem and this issue of *Frontline Initiative* may help solve it. (Publication Date: May 13, 2014)

Staff: Connie J Burkhart

Feature Issue on Stories of Advocacy, Stories of Change from People with Disabilities, Their Families, and Allies (1988-2013) (2014)

A newsletter issue featuring then-and-now personal stories from individuals with disabilities, their families, and allies that provide a snapshot of how the disability rights movement has touched individual lives over the past 25 years. This 25th anniversary issue of *Impact* brings together personal stories published in its pages between 1988-2010, and pairs them with new stories from those same individuals and families that bring readers up-to-date on their lives today. Through these stories, plus an interview with the Institute's founding director Bob Bruininks, this *Impact* recognizes the tenacity, courage, and vision of those working to bring about progress toward full citizenship and community inclusion for people with disabilities in the U.S. (Publication Date: May 09, 2014)

Staff: Vicki D Gaylord

Employment First Across the Nation: Progress on the Policy Front (March 2014)

A brief presenting Employment First across the nation through an array of online, interactive visual features that allow users to investigate the various Employment First policy approaches that states have implemented over the last decade. Employment First policies are spreading across the country as a mechanism to improve employment support systems and outcomes for people with disabilities. This new *Policy Research Brief* connects readers with the actual policies in states and additional resources to advance employment of people with disabilities. (Publication Date: March 01, 2014)

Collaborators: Association of People Supporting EmploymentFirst

State of the Science: Theories, Concepts, and Evidence Guiding Policy and Practice in Community Living and Participation for People with Intellectual Disabilities (2013)

A set of online video presentations from the July 2012 conference, State of the Science: Outcomes for People with Intellectual and Developmental Disabilities in Halifax, Nova Scotia. Experts in their fields discuss the most influential theories, principles, and "big ideas" that shape policy and practices in community supports for people with intellectual or developmental disabilities around 9 topical areas: 1. Community participation and social inclusion 2. Employment and economic self-sufficiency 3. Family support 4. Health and wellness 5. Methodological issues 6. Outcome data 7. Predictors of outcomes 8. Quality of life indicators 9. Self-determination The videos also include discussions by self-advocates and other stakeholders on many of the topics. (Publication Date: June 03, 2013)

Staff: Kristin Dean, Shawn C Lawler, Jerry W Smith

National Frontline Supervisor Competencies (April 2013)

A nationally validated set of 11 competency areas, known as the National Frontline Supervisor Competencies, guiding the work of frontline supervisors in the direct support workforce. (Publication Date: April 03, 2013)

Staff: Amy S Hewitt, Sheryl A Larson

Frontline Supervisor Structured Behavioral Interview Questions (April 2013)

A set of behavioral and situational interview questions gauging the knowledge of external frontline supervisor candidates about the 11 competencies identified in the *National Frontline Supervisor Competencies*. For internal candidates, refer to the *Frontline Supervisor Assessment*. (Publication Date: April 03, 2013)

Staff: Amy S Hewitt, Sheryl A Larson

Frontline Supervisor Assessment (April 2013)

A test helping frontline supervisors and frontline supervisor candidates to evaluate their current performance level and create a self-development plan. Known as the Frontline Supervisor Assessment, it is based on the 11 competencies identified in the *National Frontline Supervisor Competencies*. (Publication Date: April 03, 2013)

Staff: Amy S Hewitt, Sheryl A Larson

A Taxonomy for Postsecondary Education Programs for Students with Intellectual and Developmental Disabilities (February 2013)

A brief examining postsecondary education for students with intellectual and developmental disabilities, which is on the cusp of major growth thanks to recent federal policy and grant initiatives. Unfortunately, information regarding programs and schools serving this population is limited, thus constraining students' and families' ability to understand the offerings of individual programs and make informed choices among them. This is due both to the rapid increase in programs and the lack of a clear set of relevant characteristics to allow for programmatic comparisons. This issue of *Policy Research Brief* offers a framework for comparing the features of the growing number of programs, and lays the foundation for further study and comparison of program outcomes. The taxonomy is based on research conducted by Mary McEathron, Trisha Beuhring, Amelia Maynard, and Ann Mavis of the Evaluation Group at the University of Minnesota's Institute on Community Integration. (Publication Date: February 14, 2013)

A Review of Commonly-Used State Employment Measures in Intellectual and Developmental Disability Services (December 2012)

A brief summarizing publicly-available data sources that provide information about the employment of people with intellectual and developmental disabilities. It provides important information about these data sources, including their purposes, key definitions, and where to access the public data. Using these data sources, a state-by-state comparison of employment outcomes is conducted to provide readers with a picture of the employment landscape for people with intellectual and developmental disabilities. Finally, a discussion about how the data can be used, and the limitations of the data, is provided. The analysis was conducted at the University of Minnesota's Research and Training Center on Community Living (RTC). It reviews data gathered in 2010 and 2011. (Publication Date: December 12, 2012)

Feature Issue on Supporting New Career Paths for People with Intellectual and Developmental Disabilities (Winter/Spring 2012)

A newsletter issue exploring employment of people with intellectual and developmental disabilities, and their changing role in the American workforce. Historically, people with disabilities have often participated in very narrowly defined types of employment. There have frequently been low expectations about what they can contribute as workers. But, today self-advocates and their allies are leading a transformation in thinking about how people with intellectual and developmental disabilities can do productive, valued work in their communities. This issue of *Impact* has been prepared to provide a snapshot of some of the strategies and personal stories that embody that transformation. Written primarily for vocational service providers, employers, secondary and postsecondary educators, and families of individuals with disabilities, this issue explores some of the innovative thinking and resources that are providing expanded employment options for people with disabilities, including employment in some of the promising areas for job growth nationally. And it offers some of the success stories of people taking new paths. It is our hope that this issue will spark even more conversations, and more creative thinking, among its readers about opportunities for supporting new career paths for people with intellectual and developmental disabilities in our country. (Publication Date: June 01, 2012)

Staff: Vicki D Gaylord

Community Members' Perspectives on Inclusion: Membership of Persons with Developmental Disabilities in Community Organizations (2012)

A report covering a study about the degree of membership of people with intellectual/developmental disabilities in community organizations, and community members' perceptions of such inclusion. Efforts to increase the social inclusion of individuals with intellectual/developmental disabilities have included recommendations to support membership in community groups and organizations. However, while such recommendations have been made for more than 20 years, there is virtually no information regarding the extent of current membership of such individuals in these community groups and organizations. In this study, surveys were sent to community groups in four states in four different regions of the U.S. inquiring about group membership of individuals with disabilities in general, group members' experiences with individuals with developmental disabilities in their groups, and the benefits and challenges of having individuals with developmental disabilities as members. (Publication Date: June 01, 2012)

Staff: Angela N Amado

Self-Advocacy Online (2012-Present)

A multimedia resource providing information important to people with intellectual and developmental disabilities that is accessible to all. The content is translated into understandable language and includes videos, interactive lessons, and engaging graphics. Users can: * Explore lesson modules on key topics in self-advocacy. * Learn about research findings that are important to people with disabilities in an accessible format. * View stories from other self-advocates and hear what they have to say about key topics in self-advocacy. * List self-advocacy groups and find self-advocacy groups across the United States. (Publication Date: June 01, 2012)

Staff: John D Westerman, Shawn C Lawler, Mark R Olson, Jerry W Smith, John G Smith, Connie J Burkhart

Collaborators: The Arc of the United States

Staff Recruitment, Retention, & Training Strategies for Community Human Services Organizations (2012)

A 15-chapter textbook and how-to-guide helping organizations to select and implement strategies that address the challenges of recruiting, retaining, and training Direct Support Professionals. (Publication Date: January 01, 2012)

Staff: Amy S Hewitt, Sheryl A Larson

A National Review of Home and Community Based Services (HCBS) for Individuals with Autism Spectrum Disorders (December 2011)

A brief reporting findings of a study that gathered data in 2009-2010 about how people with autism spectrum disorders (ASD) are being served across states in Home and Community Based Services (HCBS) Medicaid waiver programs and discussing implications for providing services and supports for this growing population in the future. Autism spectrum disorders are among the fastest-growing developmental disability diagnosis in the U.S. This increased diagnosis, coupled with the large number of children with ASD now reaching adulthood, highlights the need to learn more about the services and supports that are currently available for adults with ASD, and consider those that will be needed throughout their adult lifespan. The focus in this issue of *Policy Research Brief* is on the extent to which states have included people with ASD in their Home and Community Based Services Medicaid waiver programs, the programs that have, in recent decades, been the primary source of funding support for individuals with intellectual disabilities and related conditions (such as ASD, cerebral palsy, and others) who are living in the community. Historically these systems were designed to primarily meet the needs of people with intellectual disabilities, and they present certain challenges when looked to as a source for specialized funding and support services for adults with ASD. (Publication Date: December 19, 2011)

Staff: Amy S Hewitt, Jennifer A Hall-Lande

Behavioral Outcomes of Deinstitutionalization for People with Intellectual and/or Developmental Disabilities - Third Decennial Review of U.S. Studies, 1977-2010 (April 2011)

A brief reviewing U.S. studies that have measured behavioral outcomes associated with the movement of people with intellectual and/or developmental disabilities from institutions to community residential settings. This is the third in a series of such reviews, and it is cumulative; it includes the studies contained in the earlier reviews published in 1989 and 2001. (Publication Date: April 01, 2011)

Staff: Sheryl A Larson

Feature Issue on Sexuality and People with Intellectual, Developmental and Other Disabilities (Spring/Summer 2010)

A newsletter issue exploring the question "What does it mean to affirm and support a positive, healthy sexuality for individuals with disabilities?" Its articles cover topics ranging from sexuality education in the home and school, to personal stories of dating and marriage, to legal and ethical issues for staff and agencies providing services for people with disabilities. The goal of this issue is to provide information and inspiration that further support the right and opportunity for people with intellectual, developmental, and other disabilities to understand and express this essential dimension of human life. (Publication Date: September 01, 2010)

Staff: Vicki D Gaylord

Agency Factors and Structures Which Increase Successful Outcomes in Community Participation and Socially Valued Roles (2010)

A report documenting the results of a five-year project with Lutheran Social Services in Minnesota to impact the social relationships which individuals with intellectual/developmental disabilities (ID/DD) have with other members of their communities. The project identified agency factors that influence why some individuals with ID/DD experience more community relationships and social inclusion than others served by the same agency. The report summarizes the results of the project in three areas: friendships, community group/organization membership, and valued community social roles. (Publication Date: July 01, 2010)

Staff: Angela N Amado

Quality Supports, Quality Lives (2010)

A DVD illustrating the need for and importance of the work of Direct Support Professionals (DSP), while also highlighting some of the barriers faced by DSPs, such as low pay, lack of affordable health insurance, and insufficient training. The Bureau of Labor Statistics projects that one million new DSPs will be needed by 2016. DSPs support individuals with disabilities, people with chronic health conditions, and older adults so they can live, work and participate fully in their communities. Direct Support Professional job titles vary, and include in-home support worker, personal assistant, home health aide, job coach, direct support worker, and independent living skills instructor. These supports are essential across the lifespan to ensure that people who rely on supports can live healthy, safe lives. However the barriers lead to high turnover among DSPs, creating a workforce crisis that, combined with the aging of the nation, needs immediate attention from our nation's policymakers. The audience for this video is provider agencies, DSP networks, disability organizations, and those interested in improving the workforce. A portion of the proceeds from this video supports the National Alliance for Direct Support Professionals (NADSP). (Publication Date: January 01, 2010)

Staff: Jerry W Smith

We Have Choices (2010)

An award-winning documentary profiling individuals with developmental disabilities across New York state who have used individualized supports in taking greater control of their lives. Traditionally, funding for people with disabilities has gone directly to agencies that provide support services. Now, individuals have the opportunity to control their budgets and choose the services they want and need. In New York state, supports are available to help people make the move from living in large group homes to living in their own homes with one or two housemates. *We Have Choices* includes profiles of eight people who have made the move to their own homes, as well as discussions with service providers and Direct Support staff. Produced by the Institute's RTC Media in collaboration with the Self-Advocacy Association of New York State (SANYS). Length: 29 minutes. CC. Can be viewed online at [http://rtc.umn.edu/rtcmedia/wehavechoices/](http://rtc.umn.edu/rtcmedia/wehavechoices/). Information about ordering the DVD, which is being distributed by SANYS, is available on the Web site or by calling them at (518) 382-1454. (Publication Date: January 01, 2010)

Staff: Jerry W Smith

Collaborators: Self Advocacy Association of New York State

RTC Media Website (2015)

A website showcasing films about people with disabilities and those who provide support. Also describes the film-making services available through RTC Media. (Publication Date: January 01, 2010)

Staff: Shawn C Lawler, Jerry W Smith

Family Support Services in the United States: 2008 (May 2009)

A brief providing a state-by-state summary of services supporting individuals with disabilities living in the family home. Data presented are based on the State of the States in Developmental Disabilities Project, a longitudinal study of public financial and programmatic trends in intellectual and developmental disabilities services and supports in the states. The State of the States project is funded in part as a Data Collection Project of National Significance from the Administration on Developmental Disabilities, by the Department of Psychiatry of the University of Colorado School of Medicine, and by the Coleman Institute for Cognitive Disabilities, University of Colorado. (Publication Date: May 01, 2009)

Staff: Sheryl A Larson

Implementation of Consumer-Directed Services for Persons With Intellectual or Developmental Disabilities - A National Study (January 2009)

A brief summarizing the results of a national study on the status of consumer-directed services for persons with intellectual or developmental disabilities. The study was conducted at the University of Minnesota's Research and Training Center on Community Living and Syracuse University's Center on Human Policy, and its purpose was to investigate how consumer control is being implemented across states. Additional themes included the exploration of strategies, challenges, and best practices of consumer-directed services and supports. Information was gathered through interviews with administrators of developmental disabilities services in 42 states. The content is based on the comprehensive study entitled: "Implementation of Consumer-Directed Services: A National Study." (Publication Date: January 01, 2009)

Staff: Amy S Hewitt, Pamela M Walker, Sheryl A Larson, Jennifer A Hall-Lande

Twin Cities and Zambia Disability Connection - Final Report (2009)

A report providing an overview of the Twin Cities and Zambia Disability Connection, outlining the project's preliminary outcomes, and identifying ongoing needs for individuals with disabilities in Zambia, which may provide the focus for future work. The project was created to meet an acute need to develop more community services and supports for people with disabilities in Zambia. It is a collaboration involving the Institute on Community Integration, Arc Greater Twin Cities, Opportunity Partners, Fraser, Inc., and government and community leaders in Zambia. (Publication Date: January 01, 2009)

Feature Issue on Employment and Women with Disabilities (Summer/Fall 2008)

A newsletter issue that encourages readers to hold an expansive vision of what's possible for women with disabilities in the employment arena, and offers strategies, resources, and inspiration to realize that vision. The articles in it respond to the question, "Why is work important to women with disabilities?" and it offers many answers. According to the women with disabilities whose stories are shared here, feeling successful and important, earning money, being independent, having a reason to get up in the morning, making a meaningful difference in the lives of others, learning new things, following a sense of calling, and achieving goals are all reasons that work is important to them. At the same time, it is also true that fewer women with disabilities participate in the workforce than men with disabilities or women without disabilities. All the reasons for this difference are not entirely clear. One of the things we do know is that the expectations that people have of women with disabilities play a role in their participation in the workforce. We also know that awareness of a range of employment strategies and options on the part of professionals opens up possibilities that may otherwise be overlooked. And we know that having role models and mentors makes all the difference in the world for girls and women with disabilities as they think about what they want to do with their adult lives. Because having meaningful, valued work is such an important part of life, this *Impact* issue seeks to provide a fresh look at the topic from multiple perspectives. (Publication Date: December 01, 2008)

Staff: Vicki D Gaylord

An Independent Assessment of the Region 10 Quality Assurance Commission Voice Review Program (2008)

A report on the VOICE program, a person-centered quality assurance system that emphasizes self-determination and involves community volunteers, people with disabilities, and professionals to determine the quality of services provided. VOICE was created by the Region 10 Quality Assurance Commission in southeast Minnesota. (Publication Date: April 16, 2008)

Staff: Jerry W Smith, John G Smith

Innovative Models and Best Practices in Case Management and Support Coordination (April 2008)

A brief describing models, innovations, and best practices in case management and support coordination for persons with disabilities. The approaches presented were identified during a study exploring the redesign of case management services for people with disabilities in Minnesota, and have broader applicability to other states as well. This brief is based on the technical report ["Redesigning Case Management Services for People with Disabilities in Minnesota: A Report to the Legislature"] (http://rtc.umn.edu/docs/DHS-5062-ENG.pdf). (Publication Date: April 01, 2008)

Staff: Angela N Amado, Sheryl A Larson

Other Voices: The Minnesota Region 10 Quality Assurance Process (2008)

A documentary video describing how stakeholders in southeastern Minnesota, including parents, advocates, and self-advocates, developed an alternative quality assurance process to better respond to the needs of citizens with developmental disabilities. The system they developed, called VOICE, is a person-driven process that emphasizes self-determination and includes participation by community members, people with disabilities, and professionals in determining the quality of services provided. (Publication Date: January 01, 2008)

Staff: Jerry W Smith

Final Report: National Training Institute for Frontline Supervisors (2007)

A report describing a project that refined, tested, and delivered a "Train-the-Trainer" model to the National Training Institute for Frontline Supervisors. The project also provided a distributed learning, technical assistance and consulting model to assist community human service employers, families and consumers nationwide to recruit, retain, and train direct support professionals and frontline supervisors. (Publication Date: September 30, 2007)

Staff: Amy S Hewitt, Nancy J McCulloh, Sheryl A Larson

Feature Issue on Disaster Preparedness and People with Disabilities (Spring/Summer 2007)

A newsletter issue addressing the need for greater inclusion of people with disabilities in disaster preparedness, response, and recovery efforts. When disasters occur people with disabilities are often among those most in harm's way. In many cases this is because the planning and processes in place to respond to disasters and emergencies haven't made adequate provision for people with disabilities. Through personal stories, reflections on lessons learned from previous disasters, reviews of what works and doesn't work in policies and procedures, and a variety of preparedness checklists this issue gives readers information they can use to evaluate and improve disaster preparedness where they live, work, and participate in their communities. Whether it's doing personal emergency planning, organizing neighbors into a circle of support for one another in case of an emergency, ensuring that local and state disaster planning agencies include input from people with disabilities, or evaluating the disaster preparedness of the agency or organization in which we work, we can each take steps to make sure that when the next disaster or emergency occurs, no one is left behind. (Publication Date: August 01, 2007)

Staff: Vicki D Gaylord, Christopher J Johnstone

National Validation Study of Competencies For Frontline Supervisors and Direct Support Professionals (2007)

A report summarizing a study of the competencies needed by Frontline Supervisors (FLS) and Direct Support Professionals (DSPs) supporting people with intellectual and developmental disabilities. It includes a description of training needs, and timing of training for FLS and DSPs. Using survey methodologies, the study validated nationally the results of two comprehensive Minnesota analyses of competencies needed by DSPs and FLS, extending the existing analyses by sampling DSPs, FLS and managers in 77 agencies in five states. (Publication Date: April 01, 2007)

Staff: Amy S Hewitt, Susan N ONell, Sheryl A Larson

You Know That it's Got to be Dedication That I am Still Here: The Experiences of Direct Support Professionals During Hurricanes Katrina and Rita, and Aftermath (2007)

A report describing the experiences of Direct Support Professionals (DSPs) who worked in New Orleans between August 2005 and May 2006 - before, during, and after Hurricanes Katrina and Rita. In 2006, the University of Minnesota was asked to conduct a series of interviews and focus groups with staff from two programs of the Volunteers of America (VOA) of Greater New Orleans: Supported Living Services (offering family and semi-independent living supports to adults and children with disabilities) and Community Living Services (offering group homes for adults and children with developmental disabilities). The purpose of the interviews was to learn what happened during the hurricanes, what worked and didn't work for DSPs and those they supported in relation to the evacuation, why the DSPs returned to New Orleans, and DSP recommendations for future disaster preparation and response. (Publication Date: March 31, 2007)

Staff: Amy S Hewitt, Sheryl A Larson, Jennifer A Hall-Lande

Collaborators: Volunteers of America of Greater New Orleans

We Get It Done: Working as a Direct Support Professional (2007)

A video about and for Direct Support Professionals (DSPs) -- service professionals entrusted with the immense responsibility of assisting people with intellectual and other developmental disabilities to live rich and fulfilling lives. The expectations of DSPs are demanding, complex, and always evolving. *We Get it Done: Working as a Direct Support Professional* clearly illustrates this everyday work for New Yorkers in a variety of residential and vocational settings and provides first-person stories and advice from real DSPs. Produced by RTC Media for the New York State Association of Community and Residential Agencies. (Publication Date: January 15, 2007)

Staff: Jerry W Smith

Higher Ground: The Dedication of Direct Support Professionals During and After Hurricanes Katrina and Rita (Brief) (2007)

A brief summarizing the report, *You Know that it's Got to be Dedication that I am Still Here: The Experiences of Direct Support Professionals During Hurricanes Katrina and Rita, and the Aftermath*. It describes the experiences of Direct Support Professionals (DSPs) who worked in New Orleans between August 2005 and May 2006 - before, during, and after Hurricanes Katrina and Rita. The full length report is available at [http://ici.umn.edu/products/docs/NOLAFinalReport.pdf](http://ici.umn.edu/products/docs/NOLAFinalReport.pdf). (Publication Date: January 01, 2007)

Staff: Amy S Hewitt, Sheryl A Larson, Jennifer A Hall-Lande

Collaborators: Volunteers of America of Greater New Orleans

Higher Ground: The Dedication of Direct Support Professionals During and After Hurricanes Katrina and Rita (DVD) (2007)

A documentary film telling the stories of some of the heroic Direct Support Professionals from New Orleans who, despite long hours, low pay, and tremendous stress and trauma, continued to provide support services during and after the storms while often not knowing the fate of their own families. For months, these dedicated women and men put others before themselves, providing care and support with improvised resources. For these heroes of New Orleans, being a direct Support Professional is much more than a job. A preview of the 47-minute DVD is online at [www.highergroundthemovie.org](http://rtc.umn.edu/rtcmedia/higherground/). (Publication Date: January 01, 2007)

Staff: Jerry W Smith

Collaborators: Volunteers of America of Greater New Orleans

The Inclusion of Disability as Grounds for Termination of Parental Rights in State Codes (October 2006)

A brief examining state policies regarding termination of parental rights, focusing on the extent to which states use disability status as grounds for termination. (Publication Date: October 01, 2006)

Staff: Sheryl A Larson

Characteristics of Aging Caregivers in the NHIS-D (July 2006)

A brief summarizing findings from the National Health Interview Survey Disability Supplement conducted by the U.S. Bureau of the Census, National Center on Health Statistics in 1994 and 1995. It examines characteristics and outcomes for family members, ages 55 and older, who shared households with persons with intellectual and/or developmental disabilities (ID/DD) or functional limitations only (FL Only). This brief estimates the population of aging caregivers and presents logistic regressions examining the factors that influence selected outcomes for those caregivers (poor health status and poor mental health status). (Publication Date: July 01, 2006)

Staff: Lynda L Anderson, Sheryl A Larson

Family Support Service in the United States (February 2006)

A brief providing an overview of family support services in the states based on data gathered for the State of the States in Developmental Disabilities Project, a longitudinal study of public financial and programmatic trends in intellectual or developmental disabilities (ID/DD) conducted by the University of Colorado Department of Psychiatry and the Coleman Institute for Cognitive Disabilities, University of Colorado, Boulder. (Publication Date: February 01, 2006)

Staff: Sheryl A Larson

Mothers with Disabilities - Characteristics and Outcomes: An Analysis From the 1994/1995 NHIS-D (December 2005)

A brief summarizing findings from the National Health Interview Survey conducted by the U.S. Bureau of the Census, National Center on Health Statistics in 1994 and 1995. In these years, 202,560 people were surveyed using the National Health Interview Survey Disability Supplement (NHISD), including 140 mothers with intellectual and/or developmental disabilities (ID/DD) and 1,081 mothers with other substantial functional limitations (FL Only). This DD Data Brief examines the characteristics and outcomes for mothers with disabilities and their children, estimates the number of mothers with ID/DD in the U.S. noninstitutionalized population, and examines factors that influence developmental outcomes for both mothers with disabilities and their children. (Publication Date: December 01, 2005)

Staff: Lynda L Anderson, Sheryl A Larson

Status of Institutional Closure Efforts in 2005 (September 2005)

A brief examining and summarizing the research and policy issues that state policymakers may face as they consider whether to increase, reduce, or close institutions in their own states. (Publication Date: September 01, 2005)

Staff: Pamela M Walker, Sheryl A Larson

Social Activities of Non-Institutionalized Adults in the NHIS-D: Gender, Age, and Disability Differences (September 2005)

A follow-up brief to issue 3(1) describing the social activities of adults with intellectual and/or developmental disabilities (ID/DD) using the National Health Interview Survey Disability Supplement(NHIS-D). The main finding of that earlier brief was that the most common social activities for individuals with ID/DD were getting together with friends or neighbors, meeting relatives, and talking on the phone with friends or neighbors. This DD Data Brief takes the next step by comparing social activities of adults with ID/DD to those of adults with other types of disabilities. It also uses inferential statistics to identify factors (including work history) associated with differences in social activity participation. (Publication Date: September 01, 2005)

Staff: Sheryl A Larson

Response Patterns Among Adult Respondents with Mental Retardation in the National Health Interview Survey, 1997-2002 (July 2004)

A brief representing a departure from previous issues in the series, which have focused on the characteristics and needs of persons with intellectual or developmental disabilities (ID/DD) in the non-institutionalized U.S. population based on results from the National Health Interview Survey on Disability (NHIS-D) fielded in 1994-1995. This issue presents findings from the later years of the NHIS. It focuses on one of the issues in identifying and describing the characteristics of people with ID/DD in the 1997 NHIS and later, and describes response rate and proxy response issues that disproportionately affect individuals with ID/DD. (Publication Date: July 01, 2004)

Staff: Sheryl A Larson

Costs and Outcomes of Community Services for Persons with Intellectual and Developmental Disabilities (May 2004)

A brief reviewing available research on the costs and outcomes of community service provision for people with intellectual disabilities (or "mental retardation") and developmental disabilities, with a particular emphasis on residential services. It focuses on a number of key issues related not only to public expenditures, but also to funding systems, related policies and regulations, and their impact on service systems, on specific service types, and on service users. (Publication Date: May 01, 2004)

Staff: Vicki D Gaylord, Roger Stancliffe

Direct Support Professional Recruitment Toolkit (2004)

A resource helping human service employers recruit and retain quality Direct Support Professionals (DSPs). This resource provides tools to create an exciting, dynamic recruitment plan, resulting in a large pool of qualified applicants. The toolkit, which may be used by agencies, individuals, families, consortia, and organizations, provides: * Information on how to develop a marketing strategy and recruitment plan that meets each employer's unique needs. * Information on where to find people who make great DSPs. * Samples of effective recruitment tools designed to reach target niche groups. * A CD-ROM (PC/Mac) with templates that can be customized to produce professional, eye-catching materials. (Publication Date: January 01, 2004)

Gender, Age, and Disability Differences in Functional Limitations for Non-Institutionalized Adults in the NHIS-D (January 2004)

A brief summarizing findings from the National Health Interview Survey conducted by the U.S. Bureau of the Census, National Center on Health Statistics, in 1994 and 1995, which included a Disability Supplement. The brief examines gender, age, and functional limitations and the relationship between age, functional limitations, and intellectual/developmental disabilities for adults, with a specific focus on adult women. Descriptive population estimates and a series of logistic regressions are used to examine the unique associations with various functional limitations of gender, age, disability, health status, race, and economic status. This brief also examines the relationship between older and younger adults, and differences by gender, disability type, and limitation type. (Publication Date: January 01, 2004)

Staff: Sheryl A Larson

Quality Mall (2004 - Present)

An interactive database providing an online clearinghouse of over 3,500 resources from around the country related to person-centered services and supports for persons with intellectual and developmental disabilities. For use by individuals with disabilities, families, advocates, government officials, and service providers, it covers a wide variety of topical areas related to community participation and inclusion, and quality of life. Quality Mall is managed by the Institute's Research and Training Center on Community Living. (Publication Date: January 01, 2004)

Staff: Angela N Amado, Claire Cunningham, Jerry W Smith, Julie E Dahlof Kramme, John G Smith

Service Use by and Needs of Adults with Functional Limitations or ID/DD in the NHIS-D: Difference by Age, Gender, and Disability (December 2003)

A brief summarizing findings from the National Health Interview Survey on Disability conducted by the U.S. Bureau of the Census, National Center on Health Statistics in 1994 and 1995. It is an extension of the April 2001 MR/DD Data Brief on characteristics of and service use by persons with MR/DD living in their own homes or with family members. This brief re-examines employment services and status, personal supports used and needed, professional and mental health services, previous longterm care services, transportation services, preventative health care, and waiting for services. The new component in this brief is an examination of how service use and needs vary by age (for persons 18-35 years versus persons 36 years and older), gender, and disability group (persons with intellectual and/or developmental disabilities [ID/DD] versus persons with one or more substantial functional limitations who do not meet the criteria of having ID/DD). It uses a series of logistic regressions to examine how the services and support needs vary by age, gender, and disability group after controlling for overall health status, race, and economic status. (Publication Date: December 01, 2003)

Staff: Sheryl A Larson

Medicaid Home and Community-Based Services - The First 20 Years (September 2003)

A brief reviewing the implementation of the Medicaid Home and Community-Based Services "waiver" program during its first 20 years, from Fiscal Year 1982 through Fiscal Year 2002. The review provides a description of the program, its initial purposes, patterns and trends in its use, its relationship to other services, and challenges in the years ahead. (Publication Date: September 01, 2003)

Staff: Vicki D Gaylord

Feature Issue on Social Inclusion Through Recreation for Persons with Disabilities (Summer 2003)

A newsletter issue proposing that one way to increase the social inclusion of individuals with disabilities is for children, youth and adults with and without disabilities to play together. While recent decades have witnessed a significant increase in the participation of persons with developmental and other disabilities in regular education classrooms and community workplaces, participation and inclusion are not the same thing. Many individuals with disabilities learn, work, and live alongside nondisabled peers, but too often they have little social connection to and few friendships with those around them. Recreation programs have a number of characteristics that make them ideal places for individuals with disabilities to experience social inclusion and friendship building. The articles in this issue describe those characteristics, strategies for making use of them to enhance the opportunities for meaningful and ongoing social connections between participants with and without disabilities, and barriers to recreation participation that must be addressed. Its goal is to encourage recreation, education, and community services professionals, along with families and individuals with disabilities, to find additional ways in which everyone can experience the benefits of social inclusion. (Publication Date: August 01, 2003)

Staff: Vicki D Gaylord, Brian H Abery

Health Insurance Coverage and Health Care Experiences of Persons with Disabilities in the NHIS-D (May 2003)

A brief describing the experiences with public and private health insurance coverage for people with functional limitations, people with IDD, and people who do not have IDD or functional limitations, and examining the variations in these outcomes by gender and age. It is based on data collected in 1994 and 1995 through the National Health Interview Survey Disability Supplement (NHIS-D) that collected extensive information about disabilities among the individuals sampled as part of the annual census-based household interview surveys. The NHIS describes demographic characteristics, health status, functional limitations, and supports and services used by persons in the civilian, noninstitutionalized population in the United States. (Publication Date: May 01, 2003)

Staff: Lynda L Anderson, Sheryl A Larson

Health Status, Health Care Utilization Patterns, and Health Care Outcomes of Persons with Intellectual Disabilities - A Review of the Literature (September 2002)

A brief reviewing the current literature in the area of health care needs of people with intellectual and other developmental disabilities and allied medical conditions, looking at the degree to which such individuals are or could be receiving medical care in the community. It provides a summary of research relevant to improving the service delivery system by addressing barriers to community medical care and services, determining what services are needed, and developing strategies and assurances for provision of quality medical care. (Publication Date: September 01, 2002)

Staff: Vicki D Gaylord

Feature Issue on Faith Communities and Persons with Developmental Disabilities (Winter 2001/02)

A newsletter issue continuing the dialog about inclusion that has already begun between persons with disabilities, faith communities, and the disability services system. "A basic component of human rights is freedom of religious expression. Individuals with disabilities have the right to choose their own expressions of spirituality, to practice those beliefs and expressions, and to participate in the religious community of their choice or other spiritual activities." This is the opening of the policy statement on Spirituality and Religious Freedom approved by the American Association on Mental Retardation (AAMR), now the American Association on Intellectual and Developmental Disabilities. It goes on to note that individuals with developmental disabilities and their families still experience mixed responses to their presence, gifts, and needs from congregations, and limited support for religious participation on the part of disability service providers. The articles in this *Impact* provide theological frameworks for inclusion, practical tips for welcoming individuals with disabilities into congregations, ideas for service providers seeking to support religious expression, and success stories from around the country. Its purpose is to contribute to the dismantling of the remaining barriers between persons with developmental disabilities and their chosen communities of faith. (Publication Date: April 01, 2002)

Staff: Vicki D Gaylord, Angela N Amado

We Watch the City: Stories in the Shadow of 9/11 (2002)

A documentary video sharing the experiences of New Yorkers with intellectual or other developmental disabilities, and those who support them, in the aftermath of September 11, 2001. The film also looks at the backstory: persons with developmental disabilities as valuable, productive citizens and New Yorkers. (Publication Date: January 01, 2002)

Staff: Jerry W Smith

Functional Limitations of Adults in the U.S. Non-Institutionalized Population: NHIS-D Analysis (October 2001)

A brief comparing the demographic characteristics, health status, functional limitations, and perceived disability status for adults in three groups who had mental retardation and/or developmental disabilities with those of adults with functional limitations only and those of adults with no substantial functional limitations. It is based on data from the 1994-95 National Health Interview Survey Disability Supplement (NHIS-D) that collected extensive information about disabilities among the individuals sampled as part of the annual census-based household interview surveys. The NHIS focuses on the civilian, non-institutionalized population, describing demographic characteristics, health status, functional limitations, and supports and services used. The authors identified 1,116 adults in the combined 1994/1995 NHIS-D sample as having mental retardation and/or developmental disabilities (MR/DD), estimating that 1,495,183 (+/- 3.2%) non-institutionalized adult Americans meet the criteria for one or both of these categories. They also identified 12,078 adults who had substantial functional limitations in one or more of seven major areas of life activity, but who did not meet the criteria for having MR/DD. They estimate that 15,428,317 (+/- 1.48%) noninstitutionalized adult Americans have substantial functional limitations, but not MR/DD. (Publication Date: October 01, 2001)

Staff: Lynda L Anderson, Sheryl A Larson

Characteristics of and Service Use by Persons With MR/DD Living in Their Own Homes or With Family Members (April 2001)

A brief describing people with MR/DD living in the community in terms of basic demographic characteristics, functional and other limitations, residential services history, medical services received, social activities, transportation used, and waiting list status, and comparing people with and without MR/DD in regard to health status and service, functional limitations, major activity status, and school status. It is based on the data from the 1994-95 National Health Interview Survey Disability Supplement (NHIS-D) that collected extensive information about disabilities among the individuals sampled as part of the annual census-based household interview surveys. The NHIS focuses on the civilian, noninstitutionalized population in the United States, describing demographic characteristics, health status, functional limitations, and supports and services used. (Publication Date: April 01, 2001)

Staff: Lynda L Anderson, Sheryl A Larson

The Peer Empowerment Program (PEP): A Complete Toolkit for Planning and Implementing Mentoring Programs Within Community-Based Human Services Organizations (2001)

A planning guide and curriculum for supervisors and agency staff focusing on socialization and skill development for all employees. Includes Program Coordinator Guide, Facilitator Guide, and Learner Guide. (Publication Date: January 01, 2001)

Staff: Amy S Hewitt, Susan N ONell, Sheryl A Larson

Removing the Revolving Door - Strategies to Address Recruitment and Retention Challenges (2001)

A curriculum targeting frontline supervisors and managers regarding the use of effective recruitment, retention, and training strategies. Includes Facilitator Guide and Learner Guide. (Publication Date: January 01, 2001)

Staff: Amy S Hewitt, Susan N ONell, Sheryl A Larson

The Power of Diversity: Supporting the Immigrant Workforce (2001)

A curriculum helping supervisors and other agency staff find, support, and retain immigrant workers. Includes Facilitator Guide and Learner Guide. (Publication Date: January 01, 2001)

Staff: Lynda L Anderson, Amy S Hewitt, et. al., Susan N ONell

Feature Issue on Violence Against Women with Developmental or Other Disabilities (Fall 2000)

A newsletter issue examining violence as it impacts women with developmental and other disabilities - what we know, what we don't know, and what needs to be done to prevent it and to help women recover from it. A major civil rights, quality of life, and health issue for women with developmental and other disabilities is the presence of violence in their lives. Women with disabilities experience the highest rate of personal violence - violence at the hands of spouses, partners, boyfriends, family members, caregivers, and strangers - of any group in our society today. Yet, they are often invisible in the crime statistics, frequently find community services such as domestic and sexual violence programs inadequately prepared to fully understand and meet their needs, face disability service systems that don't clearly see and effectively respond to the violence, and are all too commonly devalued and unsupported because of societal prejudice. This *Impact* offers strategies and ideas for bringing together disability service providers, sexual and domestic violence programs, law enforcement and the justice system, policymakers, researchers, and women with disabilities to address these issues, in the hope that this epidemic will soon end. (Publication Date: December 01, 2000)

Staff: Vicki D Gaylord, Wendie H Abramson

Assessing Retention Outcomes (2000)

A document and form helping Direct Support managers to determine their staff turnover and vacancy rates. This, in turn, allows them to choose retention strategies, identify reasons for agency turnover, and benchmark the effectiveness of current interventions. (Publication Date: June 13, 2000)

Staff: Sheryl A Larson

Workforce Status and Outcomes (2000)

An instrument helping Direct Support agency managers to determine the success of their recruitment and retention efforts. (Publication Date: January 01, 2000)

Behavioral Outcomes of Deinstitutionalization for People with Intellectual Disabilities - A Review of Studies Conducted Between 1980 and 1999 (October 1999)

A brief reporting the results from a review of 38 published studies that measured behavioral outcomes associated with the movement of people with mental retardation from public institutions to community residential settings. (Publication Date: October 01, 1999)

Staff: Vicki D Gaylord, Sheryl A Larson

Through Asking the Right Questions... You Can Reach Your Destination (1999)

A pocket guide containing questions for families and persons with disabilities to ask as they interview residential service providers and decide which are best suited to meet their support needs. (Publication Date: January 01, 1999)

Staff: Brian H Abery, John G Smith