Social inclusion


Valuing Lives: Wolf Wolfensberger and the Principle of Normalization (2016)

A film documenting the social paradigm shift triggered by Wolf Wolfensberger, a professor and change agent who, in the early 1970s, popularized and expanded the principle of normalization of people with disabilities into a framework for community inclusion. People are often judged according to how they conform to commonly-held beliefs of what is normal - normal appearance, behavior, ability. And those deemed "abnormal" can be considered undeserving of common respect, dignity, and even basic rights. For many with intellectual and developmental disabilities, this has meant segregation, isolation, and exclusion, with little or no opportunity to access the good things in life. Through archival images and footage, and dozens of interviews, *Valuing Lives* explores the principle of normalization, an idea originating in Scandinavia that challenged fundamental assumptions about people with intellectual disabilities, and the iconoclastic professor whose writings and intense workshops trained thousands of human services professionals in the theory and practice of this idea. This brought about a sea change in thinking at a time when it was considered normal to warehouse nearly 200,000 Americans with intellectual disabilities in large institutions. Wolfensberger helped change the conversation from institutional reform to rethinking society's assumptions of disability and the role of human services. There are still institutions for people with intellectual disabilities, and some voices are calling for new, segregated communities where, it is believed, they will be safer "with their own kind." It is time for a new generation of leaders to rediscover the principle of normalization. (Publication Date: April 05, 2016)

Staff: Jerry W Smith

Collaborators: Institute on Disabilities, Temple University [Philadelphia, PA]

Social Inclusion for people with intellectual and developmental disabilities (2016)

A pair of videos and an [accompanying brief]( outlining social Inclusion for people with intellectual and developmental disabilities. A researcher and a self-advocate both provide short presentations. (Publication Date: March 01, 2016)

Staff: Jerry W Smith

Of the Community: Eight Stories of Community Living, Participation, and Inclusion (2015)

A film telling the stories of eight individuals with disabilities who have vibrant lives in which they live and participate in their communities in the ways they choose. Their stories illustrate the power of respect, imagination, flexibility, high expectations, and commitment to providing truly individualized, person-centered supports. Those have been found to be the keys to supporting people with intellectual and developmental disabilities to be truly *in* and *of* their communities. Their stories may be personal, but they reflect decades of social progress and ongoing challenges. Forty years ago, large institutions that warehoused thousands of people with disabilities were common. Today, most people with intellectual and developmental disabilities in the U.S. live in their communities with their families, in group homes, or in houses and apartments with needed supports. However, while many live *in* their communities, they are not *of* their communities. This is, in part, because of institutional mindsets that are present in many community group homes and other services in the U.S. In addition, there are efforts resurfacing to build new segregated institutions in spite of decades of research showing that people with intellectual and developmental disabilities have happier, healthier, and more productive lives when they live in smaller community homes with individualized supports and services. Today, people with disabilities expect to live where and with whom they choose, work in real jobs with real wages, be connected with family and friends in deep personal relationships, practice faith if and as they choose, grow through lifelong learning, explore personal interests, experience physical and emotional well-being, have choices, take risks, and accept the responsibilities of citizenship. (Publication Date: October 01, 2015)

Staff: Jerry W Smith

Feature Issue on the ADA and People with Intellectual, Developmental, and Other Disabilities (Winter 2015)

A newsletter issue marking the 25th anniversary of the Americans with Disabilities Act (ADA). In this *Impact* are articles by individuals with disabilities, families, advocates, service providers, researchers, and others talking about how the ADA has made a difference in their lives, the lives of their loved ones, and in our nation. At the same time, this *Impact* also focuses on ways in which the ADA hasn't fully addressed a number of the barriers faced by people with intellectual and developmental disabilities as they seek equal opportunity and inclusion in their communities. By sharing this range of perspectives, the issue encourages readers to both pause to celebrate the anniversary of the ADA as a turning point in our nation's journey, and continue traveling toward that horizon of full inclusion we have yet to reach. Complementing the *Impact* are over 40 short video clips posted on the Self-Advocacy Online Web site [(]( of the Research and Training Center on Community Living in which people with disabilities talk about the importance and meaning of the ADA for them. (Publication Date: March 26, 2015)

Staff: Vicki D Gaylord, Amy S Hewitt, Clifford L Poetz

Active Support: People Fully Engaged in Life (2014)

A DVD providing an overview of Active Support -- how it is implemented and the kind of training involved to make it successful. Active Support is an organizational intervention that enables Direct Support Professionals in community settings to effectively support the engagement of persons with intellectual or developmental disabilities (ID/DD) throughout their day and in their communities. The DVD includes a long version (24:12) and short version (5:30) of the program. Both programs are closed captioned. (Publication Date: September 04, 2014)

Staff: Jerry W Smith

Collaborators: University of Sydney [Australia], Deakin University [Australia]

Social Capital (May 2014)

A newsletter issue for Direct Support Professionals (DSPs) exploring the importance of social capital in the lives of the people they support. Social capital is the value a person gets from participating in social networks, such as families, friends, school, work, and faith-based organizations. Involvement of people with disabilities in social networks also brings value to the community. Integrated communities provider richer experiences for all. These networks help people find jobs, homes, transportation, advisors, volunteer opportunities, and confidants. Individuals with developmental disabilities often have small social networks and limited opportunities to gain social capital, but families and DSPs understand this problem and this issue of *Frontline Initiative* may help solve it. (Publication Date: May 13, 2014)

Staff: Connie J Burkhart

Feature Issue on Stories of Advocacy, Stories of Change from People with Disabilities, Their Families, and Allies (1988-2013) (2014)

A newsletter issue featuring then-and-now personal stories from individuals with disabilities, their families, and allies that provide a snapshot of how the disability rights movement has touched individual lives over the past 25 years. This 25th anniversary issue of *Impact* brings together personal stories published in its pages between 1988-2010, and pairs them with new stories from those same individuals and families that bring readers up-to-date on their lives today. Through these stories, plus an interview with the Institute's founding director Bob Bruininks, this *Impact* recognizes the tenacity, courage, and vision of those working to bring about progress toward full citizenship and community inclusion for people with disabilities in the U.S. (Publication Date: May 09, 2014)

Staff: Vicki D Gaylord

Research and Training Center on Community Living (RTC-CL) Website (2014)

A website presenting the Research and Training Center on Community Living (RTC-CL), a center that conducts a wide range of research, training, and technical assistance and dissemination projects related to community supports under its center grant and related project funding. The RTC-CL is NIDILRR's national center on community living and participation for persons with intellectual and developmental disabilities. RTC-CL is a center within ICI. (Publication Date: January 01, 2014)

Staff: Kristin Dean, Shawn C Lawler, Jonathon P Walz

Friends: Connecting People with Disabilities and Community Members (2013)

A manual providing concrete, "how-to" strategies for supporting relationships between people with disabilities and other community members. It describes why such friendships are important to people with disabilities and why it is important to promote community belonging and membership. The manual includes specific activities to guide users in creating a plan for connecting people. This manual is designed for agency staff, but can also be used by parents, support coordinators, teachers, staff, and people with disabilities to support community relationships. Additional Activity Worksheets are available. (Publication Date: October 01, 2013)

State of the Science: Theories, Concepts, and Evidence Guiding Policy and Practice in Community Living and Participation for People with Intellectual Disabilities (2013)

A set of online video presentations from the July 2012 conference, State of the Science: Outcomes for People with Intellectual and Developmental Disabilities in Halifax, Nova Scotia. Experts in their fields discuss the most influential theories, principles, and "big ideas" that shape policy and practices in community supports for people with intellectual or developmental disabilities around 9 topical areas: 1. Community participation and social inclusion 2. Employment and economic self-sufficiency 3. Family support 4. Health and wellness 5. Methodological issues 6. Outcome data 7. Predictors of outcomes 8. Quality of life indicators 9. Self-determination The videos also include discussions by self-advocates and other stakeholders on many of the topics. (Publication Date: June 03, 2013)

Staff: Kristin Dean, Shawn C Lawler, Jerry W Smith

Community Members' Perspectives on Inclusion: Membership of Persons with Developmental Disabilities in Community Organizations (2012)

A report covering a study about the degree of membership of people with intellectual/developmental disabilities in community organizations, and community members' perceptions of such inclusion. Efforts to increase the social inclusion of individuals with intellectual/developmental disabilities have included recommendations to support membership in community groups and organizations. However, while such recommendations have been made for more than 20 years, there is virtually no information regarding the extent of current membership of such individuals in these community groups and organizations. In this study, surveys were sent to community groups in four states in four different regions of the U.S. inquiring about group membership of individuals with disabilities in general, group members' experiences with individuals with developmental disabilities in their groups, and the benefits and challenges of having individuals with developmental disabilities as members. (Publication Date: June 01, 2012)

Self-Advocacy Online (2012-Present)

A multimedia resource providing information important to people with intellectual and developmental disabilities that is accessible to all. The content is translated into understandable language and includes videos, interactive lessons, and engaging graphics. Users can: * Explore lesson modules on key topics in self-advocacy. * Learn about research findings that are important to people with disabilities in an accessible format. * View stories from other self-advocates and hear what they have to say about key topics in self-advocacy. * List self-advocacy groups and find self-advocacy groups across the United States. (Publication Date: June 01, 2012)

Staff: John D Westerman, Shawn C Lawler, Mark R Olson, Jerry W Smith, John G Smith, Connie J Burkhart

Collaborators: The Arc of the United States

Feature Issue on Supporting the Social Well-Being of Children and Youth with Disabilities (Spring/Summer 2011)

A newsletter issue presenting practical and insightful articles about supporting the social well-being of children and youth with intellectual, developmental and other disabilities in the settings where they live their lives: schools, youth programs, neighborhoods, communities, homes. Social well-being is essential to overall health and quality of life for all children and youth. However, children and youth with disabilities are often at higher risk for experiencing lower levels of social, and related emotional, well-being than their peers without disabilities. They are among those more likely to be bullied and harassed, have a small number of friends outside their families, and participate in few extracurricular activities. This means that the adults in their lives need to be proactive in supporting and strengthening the social well-being of these young people. This *Impact* issue focuses on what adults can do to create and sustain environments that contribute to social well-being, rather than social harm, for young people with disabilities and their peers without disabilities. It includes personal stories of young people, their families and friends; practical strategies for school and community settings; research summaries and profiles of successful programs; and resources for use by educators, families, youth leaders, and others who desire to support the social growth and well-being of all our young people. (Publication Date: August 12, 2011)

Staff: Vicki D Gaylord, Brian H Abery

Impact of Two National Congregational Programs on the Social Inclusion of Individuals with Intellectual/Developmental Disabilities (2011)

A report summarizing a study of two national congregational efforts for inclusion of people with intellectual/developmental disabilities (ID/DD). The two programs were the Accessible Congregations Campaign of the National Organization on Disability, and the Befrienders Ministry. The report compares the impact on relationships and inclusion of people with ID/DD through these two different types of efforts. (Publication Date: April 01, 2011)

Collaborators: Befrienders, Accessible Congregations Campaign, National Organization on Disability

Agency Factors and Structures Which Increase Successful Outcomes in Community Participation and Socially Valued Roles (2010)

A report documenting the results of a five-year project with Lutheran Social Services in Minnesota to impact the social relationships which individuals with intellectual/developmental disabilities (ID/DD) have with other members of their communities. The project identified agency factors that influence why some individuals with ID/DD experience more community relationships and social inclusion than others served by the same agency. The report summarizes the results of the project in three areas: friendships, community group/organization membership, and valued community social roles. (Publication Date: July 01, 2010)

RTC Media Website (2015)

A website showcasing films about people with disabilities and those who provide support. Also describes the film-making services available through RTC Media. (Publication Date: January 01, 2010)

Staff: Shawn C Lawler, Jerry W Smith

Social Activities of Non-Institutionalized Adults in the NHIS-D: Gender, Age, and Disability Differences (September 2005)

A follow-up brief to issue 3(1) describing the social activities of adults with intellectual and/or developmental disabilities (ID/DD) using the National Health Interview Survey Disability Supplement(NHIS-D). The main finding of that earlier brief was that the most common social activities for individuals with ID/DD were getting together with friends or neighbors, meeting relatives, and talking on the phone with friends or neighbors. This DD Data Brief takes the next step by comparing social activities of adults with ID/DD to those of adults with other types of disabilities. It also uses inferential statistics to identify factors (including work history) associated with differences in social activity participation. (Publication Date: September 01, 2005)

Staff: Sheryl A Larson

Quality Mall (2004 - Present)

An interactive database providing an online clearinghouse of over 3,500 resources from around the country related to person-centered services and supports for persons with intellectual and developmental disabilities. For use by individuals with disabilities, families, advocates, government officials, and service providers, it covers a wide variety of topical areas related to community participation and inclusion, and quality of life. Quality Mall is managed by the Institute's Research and Training Center on Community Living. (Publication Date: January 01, 2004)

Staff: Claire Cunningham, Jerry W Smith, Julie E Dahlof Kramme, John G Smith

Feature Issue on Social Inclusion Through Recreation for Persons with Disabilities (Summer 2003)

A newsletter issue proposing that one way to increase the social inclusion of individuals with disabilities is for children, youth and adults with and without disabilities to play together. While recent decades have witnessed a significant increase in the participation of persons with developmental and other disabilities in regular education classrooms and community workplaces, participation and inclusion are not the same thing. Many individuals with disabilities learn, work, and live alongside nondisabled peers, but too often they have little social connection to and few friendships with those around them. Recreation programs have a number of characteristics that make them ideal places for individuals with disabilities to experience social inclusion and friendship building. The articles in this issue describe those characteristics, strategies for making use of them to enhance the opportunities for meaningful and ongoing social connections between participants with and without disabilities, and barriers to recreation participation that must be addressed. Its goal is to encourage recreation, education, and community services professionals, along with families and individuals with disabilities, to find additional ways in which everyone can experience the benefits of social inclusion. (Publication Date: August 01, 2003)

Staff: Vicki D Gaylord, Brian H Abery

Feature Issue on Faith Communities and Persons with Developmental Disabilities (Winter 2001/02)

A newsletter issue continuing the dialog about inclusion that has already begun between persons with disabilities, faith communities, and the disability services system. "A basic component of human rights is freedom of religious expression. Individuals with disabilities have the right to choose their own expressions of spirituality, to practice those beliefs and expressions, and to participate in the religious community of their choice or other spiritual activities." This is the opening of the policy statement on Spirituality and Religious Freedom approved by the American Association on Mental Retardation (AAMR), now the American Association on Intellectual and Developmental Disabilities. It goes on to note that individuals with developmental disabilities and their families still experience mixed responses to their presence, gifts, and needs from congregations, and limited support for religious participation on the part of disability service providers. The articles in this *Impact* provide theological frameworks for inclusion, practical tips for welcoming individuals with disabilities into congregations, ideas for service providers seeking to support religious expression, and success stories from around the country. Its purpose is to contribute to the dismantling of the remaining barriers between persons with developmental disabilities and their chosen communities of faith. (Publication Date: April 01, 2002)

Staff: Vicki D Gaylord