Self-advocacy and self-determination

Projects

College of Direct Support

Offers a nationwide, online, competency-based training curriculum to enhance the skills and knowledge of Direct Support Professionals (DSPs), frontline supervisors, and managers supporting individuals with disabilities in community settings. CDS is offered in partnership with Elsevier, a world-leading provider of scientific, technical and medical information, through Direct Course, which is a suite of online curricula for people providing services to individuals with disabilities that includes CDS and other curricula developed at other universities.

Staff: Kristin Dean, Shawn C Lawler, Amanda Ryan, Amy S Hewitt, Macdonald M Metzger, Claire E Benway, Susan N ONell, Nancy J McCulloh, Merrie L Haskins, Kelly Nye-Lengerman LGSW, Jody Hofer Van Ness, Jerry W Smith, Sheryl A Larson, Jennifer A Hall-Lande, Connie J Burkhart

Collaborators: Elsevier

History of Leadership in Developmental Disabilities: A Wiki Project

Uses Web and Wiki technology to collect, preserve, and share the history of leadership in the developmental disabilities field over the past 150 years, and pass on to future leaders the stories of how we got to where we are today. The project is creating an online history course and repository documenting the role of leadership and leaders in generating the ideas, movements, and programs that have been foundational to the developmental disabilities field, and using Wiki technology it will engage others in contributing to the multimedia content of the history course.

Staff: John D Westerman, Shawn C Lawler, Jerry W Smith

Collaborators: MENTOR Network Charitable Foundation

Self-Advocacy Online: Research and Development to Bridge the Digital Divide

Develops a model for making Web sites accessible for people with intellectual and related cognitive disabilities, and launches an educational and networking Web site for teens and adults with intellectual and other developmental disabilities targeted at those who participate in organized self-advocacy groups.

Staff: John D Westerman, Shawn C Lawler, Clifford L Poetz, Mark R Olson, Jeffrey A Nurick, Jerry W Smith, John G Smith, Connie J Burkhart

Collaborators: Self-Advocates Minnesota, HASTAC Initiative, MacArthur Foundation

Normalization Principle and Wolf Wolfensberger Project, The

Produces a 56-minute (one-hour broadcast time slot) documentary on the work of Dr. Wolf Wolfensberger, an influential American academic and sometimes controversial leader in the reform of human services, particularly services to people with developmental disabilities. Through interviews with Dr. Wolfensberger and many of those he influenced beginning in the early 1970s, we will explore the Principle of Normalization, ideas that began the deinstitutionalization of people with disabilities, the concept of Social Role Valorization, citizen advocacy, and the history of services and perceptions of socially devalued people. Though Dr. Wolfensberger has had a long and distinguished career, this documentary will focus on his contributions of the 1960s and '70s, with particular emphasis on normalization. Phase 1 of this project occurred in October 2009 and include interviewing Wolf Wolfensberger and colleagues over four days in Syracuse, NY. Phase 2, to include additional interviews, research, script development, and production, is contingent upon funding.

Staff: Shawn C Lawler, Jerry W Smith

MN Act Early Ambassador

Develops and expands on the Institute's Act Early work in culturally and linguistically diverse communities. Act Early is building a national network of agencies, organizations, and professionals (called ambassadors) that utilize the Centers for Disease Control's (CDC's) "Learn the Signs. Act Early." message. CDC selected ICI's Jennifer Hall-Lande as Minnesota's ambassador for this project. The Act Early materials promote early identification, screening, and intervention for Autism Spectrum Disorders and related neurodevelopmental disabilities in culturally and linguistically diverse communities across Minnesota. The project presents the opportunity for significant and sustained impact within culturally diverse communities to increase early screening of neurodevelopmental disabilities. While this project will provide the initial training and materials, the Act Early delegates within the community organizations will gain the skills to carry the message and outreach forward beyond the funding cycle of this grant.

Staff: Amy S Hewitt, Amy N Esler PhD, Kelly Nye-Lengerman LGSW, Anab A Gulaid, David R Johnson PhD, Jennifer A Hall-Lande

Collaborators: Minnesota Department of Education, Minneapolis Public Schools, Minnesota Department of Human Services, The Arc Greater Twin Cities, Minnesota Department of Health, Association of Maternal & Child Health Programs, Autism Society of Minnesota, The Arc of Minnesota, Somali Autism Awareness Foundation, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, MN Help Me Grow

"Learn the Signs, Act Early" Outreach Work

Develops and expands on the MN Help Me Grow and the Institute's Act Early work in culturally and linguistically diverse communities. Act Early is building a national network of agencies, organizations, and professionals (called ambassadors) that utilize the Centers for Disease Control's (CDC's) "Learn the Signs, Act Early" message. The project presents the opportunity for significant and sustained impact within culturally diverse communities to increase early screening of neurodevelopmental disabilities. While this project will provide the initial training and materials, the Act Early/MN Help Me Grow delegates within the community organizations will gain the skills to carry the message and outreach forward beyond the funding cycle of this grant.

Staff: Kristin Dean, Amy S Hewitt, Kelly Nye-Lengerman LGSW, Anab A Gulaid, Jennifer A Hall-Lande

Collaborators: MN Help Me Grow, St. Mary's Health Clinics, Consulate of Mexico in St. Paul, United States, Ecuadorian Consulate General in Minneapolis, United States, Minnesota LEND (Leadership Education in Neurodevelopmental and Related Disabilities) Program

State Systems Grant: Minnesota Act Early

Promotes early screening and identification of neurodevelopmental disabilities in culturally and linguistically diverse communities through focused outreach of the Learn the Signs, Act Early (LTSAE) campaign message. The project, which is funded by the Association of Maternal and Child Health Programs (AMCHP), presents the opportunity for significant and sustained impact within culturally diverse communities and local community organizations to promote LTSAE materials, parent-led developmental monitoring, and increase early screening of neurodevelopmental disabilities. While this project will provide the initial training and materials, the Act Early delegates within the community organizations will gain the skills to carry the message and outreach forward beyond the funding cycle of this grant. Further, the expanded Act Early Delegate network will be a framework for both efficient and broader dissemination of Act Early information and coordinated screening efforts. It is expected that Act Early Delegates will integrate Act Early messaging into their practices and identify how their unique set of resources can be brought to early screening, identification, intervention, and policies to support sustainability of effective, integrated practices and processes. Further, the materials developed will be available for ongoing use (PSAs, translated materials, etc.) across Minnesota and within the targeted communities. Training materials such as webinars will be archived and accessible on the MN LEND website for future use. The partnerships that will be developed with culturally diverse community groups will facilitate ongoing professional collaboration and future opportunities for outreach.

Staff: Amy S Hewitt, Kelly Nye-Lengerman LGSW, Anab A Gulaid, Jennifer A Hall-Lande

Collaborators: Minnesota Department of Education, Minnesota Department of Human Services, The Arc Greater Twin Cities, Minnesota Department of Health, Association of Maternal & Child Health Programs, Autism Society of Minnesota, Region 11 Interagency Early Intervention Committee, Think Small, Center for Neurobehavioral Development, University of Minnesota, MN Help Me Grow, Minnesota LEND (Leadership Education in Neurodevelopmental and Related Disabilities) Program