Person-centered planning and practices


Choice, Direction, and Control (2018)

A companion webinar to the *Frontline Initiative* issue titled, ["Choice, Direction, and Control"]( Host John Raffaele, Director of Educational Services at NADSP and authors Desiree Loucks Baer and Matthew Hezzy Smith have a conversation about supported decision making, informed decision making and being person centered as a direct support professional. They discuss the limitations of guardianship and help direct support professionals understand the role that they play in the lives of people who may have guardians. They share insights and information about the importance of always presuming that people with intellectual and developmental disabilities deserve the most possible level of control over their destiny and self-determination. (Publication Date: February 14, 2018)

Collaborators: National Alliance for Direct Support Professionals

Choice, Direction, and Control (2017)

A newsletter issue for Direct Support Professionals (DSPs) encouraging the people they support to exercise choice, direction, and control over their lives. DSPs also support people who have relationships with guardians or who utilize supported decision-making. This issue of *Frontline Initiative* includes important, accessible information for DSPs on these topics. (Publication Date: November 27, 2017)

Staff: Claire E Benway, Julie E Dahlof Kramme, Connie J Burkhart

Person-Centered Practices (2017)

A newsletter issue for Direct Support Professionals (DSPs) exploring person-centered practices. This issue of *Frontline Initiative* brought together voices on what has been happening in this work around the country. Person-Centered Thinking is a dynamic skill that considers how a person truly wants to direct their lives. People who receive services are often expected to conform and fit into routines and procedures set up by service providers or caregivers. But current service standards, which include state and federal requirements, are providing more room for person-centered practices. Person-centered practices are at the forefront as services shift away from a system-centered focus. (Publication Date: April 21, 2017)

Staff: Claire E Benway, Julie E Dahlof Kramme, Connie J Burkhart

Feature Issue on Person-Centered Positive Supports and People with Intellectual and Developmental Disabilities (Summer 2016)

An issue in the newly-redesigned *Impact* series that shares articles from around the country describing how person-centered positive supports use evidence-based practices in the service of the needs, values, and goals of the individuals receiving the support. The issue educates about the guiding principles, values, and choices that must be examined in policy and practice; profiles exemplary strategies for delivery of services; and shares personal stories of the difference that person-centered positive supports make for individuals. The information in this issue can especially help service providers, advocates, and policymakers ensure that all people with disabilities have access to quality services and supports that empower them to live the lives of their choosing. This issue is available in three formats: print, PDF download, and the new multimedia Web version that offers supplemental content including video and Webinar presentations, animation, and more. (Publication Date: August 31, 2016)

Staff: Vicki D Gaylord, Rachel L Freeman, Amy S Hewitt, Pamela M Walker

The Power of Positive Introductions: Connecting with Employers Using Person Centered Thinking Tools (#6) (2016)

A video using the tools of Person Centered Thinking to introduce the organization and job seekers. The presentation was delivered by two speakers from Creative Employment Opportunities. The target audiences are employment consultants and specialists, job coaches, provider agency managers, county case managers, and families. (Publication Date: April 27, 2016)

Staff: Kelly Nye-Lengerman LGSW

Valuing Lives: Wolf Wolfensberger and the Principle of Normalization (2016)

A film documenting the social paradigm shift triggered by Wolf Wolfensberger, a professor and change agent who, in the early 1970s, popularized and expanded the principle of normalization of people with disabilities into a framework for community inclusion. People are often judged according to how they conform to commonly-held beliefs of what is normal - normal appearance, behavior, ability. And those deemed "abnormal" can be considered undeserving of common respect, dignity, and even basic rights. For many with intellectual and developmental disabilities, this has meant segregation, isolation, and exclusion, with little or no opportunity to access the good things in life. Through archival images and footage, and dozens of interviews, *Valuing Lives* explores the principle of normalization, an idea originating in Scandinavia that challenged fundamental assumptions about people with intellectual disabilities, and the iconoclastic professor whose writings and intense workshops trained thousands of human services professionals in the theory and practice of this idea. This brought about a sea change in thinking at a time when it was considered normal to warehouse nearly 200,000 Americans with intellectual disabilities in large institutions. Wolfensberger helped change the conversation from institutional reform to rethinking society's assumptions of disability and the role of human services. There are still institutions for people with intellectual disabilities, and some voices are calling for new, segregated communities where, it is believed, they will be safer "with their own kind." It is time for a new generation of leaders to rediscover the principle of normalization. (Publication Date: April 05, 2016)

Staff: Jerry W Smith

Collaborators: Institute on Disabilities, Temple University [Philadelphia, PA]

I Choose Employment (#1) (2016)

A video designed to raise expectations for full workforce participation - that work can be a reality for anyone. The target audiences are self-advocates and families. (Publication Date: March 02, 2016)

Staff: Kelly Nye-Lengerman LGSW

Using the Language of Raised Expectations (#3) (2016)

A video emphasizing the power of words, especially where they relate to how employment is defined, addressed, and communicated. The target audiences are self-advocates, parents, educators, providers, Direct Support staff, county case managers, and assessors. (Publication Date: March 02, 2016)

Staff: Kelly Nye-Lengerman LGSW

Feature Issue on Stories of Advocacy, Stories of Change from People with Disabilities, Their Families, and Allies (1988-2013) (2014)

A newsletter issue featuring then-and-now personal stories from individuals with disabilities, their families, and allies that provide a snapshot of how the disability rights movement has touched individual lives over the past 25 years. This 25th anniversary issue of *Impact* brings together personal stories published in its pages between 1988-2010, and pairs them with new stories from those same individuals and families that bring readers up-to-date on their lives today. Through these stories, plus an interview with the Institute's founding director Bob Bruininks, this *Impact* recognizes the tenacity, courage, and vision of those working to bring about progress toward full citizenship and community inclusion for people with disabilities in the U.S. (Publication Date: May 09, 2014)

Staff: Vicki D Gaylord

Research and Training Center on Community Living (RTC-CL) Website (2014)

A website presenting the Research and Training Center on Community Living (RTC-CL), a center that conducts a wide range of research, training, and technical assistance and dissemination projects related to community supports under its center grant and related project funding. The RTC-CL is NIDILRR's national center on community living and participation for persons with intellectual and developmental disabilities. RTC-CL is a center within ICI. (Publication Date: January 01, 2014)

Staff: Kristin Dean, Shawn C Lawler, Jonathon P Walz

Friends: Connecting People with Disabilities and Community Members (2013)

A manual providing concrete, "how-to" strategies for supporting relationships between people with disabilities and other community members. It describes why such friendships are important to people with disabilities and why it is important to promote community belonging and membership. The manual includes specific activities to guide users in creating a plan for connecting people. This manual is designed for agency staff, but can also be used by parents, support coordinators, teachers, staff, and people with disabilities to support community relationships. Additional Activity Worksheets are available. (Publication Date: October 01, 2013)

Self-Advocacy Online (2012-Present)

A multimedia resource providing information important to people with intellectual and developmental disabilities that is accessible to all. The content is translated into understandable language and includes videos, interactive lessons, and engaging graphics. Users can: * Explore lesson modules on key topics in self-advocacy. * Learn about research findings that are important to people with disabilities in an accessible format. * View stories from other self-advocates and hear what they have to say about key topics in self-advocacy. * List self-advocacy groups and find self-advocacy groups across the United States. (Publication Date: June 01, 2012)

Staff: John D Westerman, Shawn C Lawler, Mark R Olson, Jerry W Smith, John G Smith, Connie J Burkhart

Collaborators: The Arc of the United States

An Independent Assessment of the Region 10 Quality Assurance Commission Voice Review Program (2008)

A report on the VOICE program, a person-centered quality assurance system that emphasizes self-determination and involves community volunteers, people with disabilities, and professionals to determine the quality of services provided. VOICE was created by the Region 10 Quality Assurance Commission in southeast Minnesota. (Publication Date: April 16, 2008)

Staff: Jerry W Smith, John G Smith

Other Voices: The Minnesota Region 10 Quality Assurance Process (2008)

A documentary video describing how stakeholders in southeastern Minnesota, including parents, advocates, and self-advocates, developed an alternative quality assurance process to better respond to the needs of citizens with developmental disabilities. The system they developed, called VOICE, is a person-driven process that emphasizes self-determination and includes participation by community members, people with disabilities, and professionals in determining the quality of services provided. (Publication Date: January 01, 2008)

Staff: Jerry W Smith

Find, Choose and Keep Great DSPs (2006)

A pair of easy-to-use toolkits helping families and people with disabilities find quality, caring, and committeed Direct Support Professionals (DSPs). There are two different versions of the tookit: one for people with disabilities and one for their family members and support providers. These toolkits, which can be used together or separately, provide: * Information on where in the community individuals and families can find the best DSPs to meet their needs. * Information on how individuals and families choose the best DSP for their needs, including how to develop a realistic job preview. * Information on how to train and support DSPs in the job so they stay longer. * A CD that provides worksheets, sample realistic job previews, and other resources. (Publication Date: January 01, 2006)

Staff: Amy S Hewitt, Nancy J McCulloh

Quality Mall (2004 - Present)

An interactive database providing an online clearinghouse of over 3,500 resources from around the country related to person-centered services and supports for persons with intellectual and developmental disabilities. For use by individuals with disabilities, families, advocates, government officials, and service providers, it covers a wide variety of topical areas related to community participation and inclusion, and quality of life. Quality Mall is managed by the Institute's Research and Training Center on Community Living. (Publication Date: January 01, 2004)

Staff: Claire Cunningham, Jerry W Smith, Julie E Dahlof Kramme, John G Smith

Through Asking the Right Questions... You Can Reach Your Destination (1999)

A pocket guide containing questions for families and persons with disabilities to ask as they interview residential service providers and decide which are best suited to meet their support needs. (Publication Date: January 01, 1999)

Staff: Brian H Abery, John G Smith