Friendships and social relationships


Partnerships in Wellness (2017)

A health promotion curriculum that addresses the unique learning needs of adults with intellectual and/or developmental disabilities (IDD) who require ongoing daily supports, have limited readings skills, and would benefit from learning about improved nutrition and activity. *Partnerships in Wellness* was designed to be holistic addressing multiple aspects of well-being, with the belief that small changes done consistently can improve health for everyone. The curriculum takes a unique approach to teaching persons with IDD about healthy living: Persons with disabilities learn alongside a partner who does not have IDD. *Partnerships in Wellness* is structured in a way that both partners can learn new information, skills, and habits as it relates to their own health and well-being. (Publication Date: July 18, 2017)

Staff: Lynda L Anderson, Connie J Burkhart

Use Your "Network" in Your Job Search (2016)

A fact sheet presenting the basic ideas, next steps, and resources useful for people with disabilities who want to use networking in their job search. (Publication Date: August 15, 2016)

Staff: Kelly Nye-Lengerman LGSW

Valuing Lives: Wolf Wolfensberger and the Principle of Normalization (2016)

A film documenting the social paradigm shift triggered by Wolf Wolfensberger, a professor and change agent who, in the early 1970s, popularized and expanded the principle of normalization of people with disabilities into a framework for community inclusion. People are often judged according to how they conform to commonly-held beliefs of what is normal - normal appearance, behavior, ability. And those deemed "abnormal" can be considered undeserving of common respect, dignity, and even basic rights. For many with intellectual and developmental disabilities, this has meant segregation, isolation, and exclusion, with little or no opportunity to access the good things in life. Through archival images and footage, and dozens of interviews, *Valuing Lives* explores the principle of normalization, an idea originating in Scandinavia that challenged fundamental assumptions about people with intellectual disabilities, and the iconoclastic professor whose writings and intense workshops trained thousands of human services professionals in the theory and practice of this idea. This brought about a sea change in thinking at a time when it was considered normal to warehouse nearly 200,000 Americans with intellectual disabilities in large institutions. Wolfensberger helped change the conversation from institutional reform to rethinking society's assumptions of disability and the role of human services. There are still institutions for people with intellectual disabilities, and some voices are calling for new, segregated communities where, it is believed, they will be safer "with their own kind." It is time for a new generation of leaders to rediscover the principle of normalization. (Publication Date: April 05, 2016)

Staff: Jerry W Smith

Collaborators: Institute on Disabilities, Temple University [Philadelphia, PA]

Social Capital (May 2014)

A newsletter issue for Direct Support Professionals (DSPs) exploring the importance of social capital in the lives of the people they support. Social capital is the value a person gets from participating in social networks, such as families, friends, school, work, and faith-based organizations. Involvement of people with disabilities in social networks also brings value to the community. Integrated communities provider richer experiences for all. These networks help people find jobs, homes, transportation, advisors, volunteer opportunities, and confidants. Individuals with developmental disabilities often have small social networks and limited opportunities to gain social capital, but families and DSPs understand this problem and this issue of *Frontline Initiative* may help solve it. (Publication Date: May 13, 2014)

Staff: Connie J Burkhart

Feature Issue on Stories of Advocacy, Stories of Change from People with Disabilities, Their Families, and Allies (1988-2013) (2014)

A newsletter issue featuring then-and-now personal stories from individuals with disabilities, their families, and allies that provide a snapshot of how the disability rights movement has touched individual lives over the past 25 years. This 25th anniversary issue of *Impact* brings together personal stories published in its pages between 1988-2010, and pairs them with new stories from those same individuals and families that bring readers up-to-date on their lives today. Through these stories, plus an interview with the Institute's founding director Bob Bruininks, this *Impact* recognizes the tenacity, courage, and vision of those working to bring about progress toward full citizenship and community inclusion for people with disabilities in the U.S. (Publication Date: May 09, 2014)

Staff: Vicki D Gaylord

Friends: Connecting People with Disabilities and Community Members (2013)

A manual providing concrete, "how-to" strategies for supporting relationships between people with disabilities and other community members. It describes why such friendships are important to people with disabilities and why it is important to promote community belonging and membership. The manual includes specific activities to guide users in creating a plan for connecting people. This manual is designed for agency staff, but can also be used by parents, support coordinators, teachers, staff, and people with disabilities to support community relationships. Additional Activity Worksheets are available. (Publication Date: October 01, 2013)

State of the Science: Theories, Concepts, and Evidence Guiding Policy and Practice in Community Living and Participation for People with Intellectual Disabilities (2013)

A set of online video presentations from the July 2012 conference, State of the Science: Outcomes for People with Intellectual and Developmental Disabilities in Halifax, Nova Scotia. Experts in their fields discuss the most influential theories, principles, and "big ideas" that shape policy and practices in community supports for people with intellectual or developmental disabilities around 9 topical areas: 1. Community participation and social inclusion 2. Employment and economic self-sufficiency 3. Family support 4. Health and wellness 5. Methodological issues 6. Outcome data 7. Predictors of outcomes 8. Quality of life indicators 9. Self-determination The videos also include discussions by self-advocates and other stakeholders on many of the topics. (Publication Date: June 03, 2013)

Staff: Kristin Dean, Shawn C Lawler, Jerry W Smith

Feature Issue on Supporting the Social Well-Being of Children and Youth with Disabilities (Spring/Summer 2011)

A newsletter issue presenting practical and insightful articles about supporting the social well-being of children and youth with intellectual, developmental and other disabilities in the settings where they live their lives: schools, youth programs, neighborhoods, communities, homes. Social well-being is essential to overall health and quality of life for all children and youth. However, children and youth with disabilities are often at higher risk for experiencing lower levels of social, and related emotional, well-being than their peers without disabilities. They are among those more likely to be bullied and harassed, have a small number of friends outside their families, and participate in few extracurricular activities. This means that the adults in their lives need to be proactive in supporting and strengthening the social well-being of these young people. This *Impact* issue focuses on what adults can do to create and sustain environments that contribute to social well-being, rather than social harm, for young people with disabilities and their peers without disabilities. It includes personal stories of young people, their families and friends; practical strategies for school and community settings; research summaries and profiles of successful programs; and resources for use by educators, families, youth leaders, and others who desire to support the social growth and well-being of all our young people. (Publication Date: August 12, 2011)

Staff: Vicki D Gaylord, Brian H Abery

Impact of Two National Congregational Programs on the Social Inclusion of Individuals with Intellectual/Developmental Disabilities (2011)

A report summarizing a study of two national congregational efforts for inclusion of people with intellectual/developmental disabilities (ID/DD). The two programs were the Accessible Congregations Campaign of the National Organization on Disability, and the Befrienders Ministry. The report compares the impact on relationships and inclusion of people with ID/DD through these two different types of efforts. (Publication Date: April 01, 2011)

Collaborators: Befrienders, Accessible Congregations Campaign, National Organization on Disability

Feature Issue on Sexuality and People with Intellectual, Developmental and Other Disabilities (Spring/Summer 2010)

A newsletter issue exploring the question "What does it mean to affirm and support a positive, healthy sexuality for individuals with disabilities?" Its articles cover topics ranging from sexuality education in the home and school, to personal stories of dating and marriage, to legal and ethical issues for staff and agencies providing services for people with disabilities. The goal of this issue is to provide information and inspiration that further support the right and opportunity for people with intellectual, developmental, and other disabilities to understand and express this essential dimension of human life. (Publication Date: September 01, 2010)

Staff: Vicki D Gaylord

Agency Factors and Structures Which Increase Successful Outcomes in Community Participation and Socially Valued Roles (2010)

A report documenting the results of a five-year project with Lutheran Social Services in Minnesota to impact the social relationships which individuals with intellectual/developmental disabilities (ID/DD) have with other members of their communities. The project identified agency factors that influence why some individuals with ID/DD experience more community relationships and social inclusion than others served by the same agency. The report summarizes the results of the project in three areas: friendships, community group/organization membership, and valued community social roles. (Publication Date: July 01, 2010)

RTC Media Website (2015)

A website showcasing films about people with disabilities and those who provide support. Also describes the film-making services available through RTC Media. (Publication Date: January 01, 2010)

Staff: Shawn C Lawler, Jerry W Smith

Social Activities of Non-Institutionalized Adults in the NHIS-D: Gender, Age, and Disability Differences (September 2005)

A follow-up brief to issue 3(1) describing the social activities of adults with intellectual and/or developmental disabilities (ID/DD) using the National Health Interview Survey Disability Supplement(NHIS-D). The main finding of that earlier brief was that the most common social activities for individuals with ID/DD were getting together with friends or neighbors, meeting relatives, and talking on the phone with friends or neighbors. This DD Data Brief takes the next step by comparing social activities of adults with ID/DD to those of adults with other types of disabilities. It also uses inferential statistics to identify factors (including work history) associated with differences in social activity participation. (Publication Date: September 01, 2005)

Staff: Sheryl A Larson

Quality Mall (2004 - Present)

An interactive database providing an online clearinghouse of over 3,500 resources from around the country related to person-centered services and supports for persons with intellectual and developmental disabilities. For use by individuals with disabilities, families, advocates, government officials, and service providers, it covers a wide variety of topical areas related to community participation and inclusion, and quality of life. Quality Mall is managed by the Institute's Research and Training Center on Community Living. (Publication Date: January 01, 2004)

Staff: Claire Cunningham, Jerry W Smith, Julie E Dahlof Kramme, John G Smith

Children with Disabilities: Social Roles and Family Impacts (August 2002)

A brief using the 1994-1995 Child Disability Follow-Back Survey (DFS) of the National Health Interview Survey (NHIS) to examine the characteristics of children between the ages of 6 and 17 who were identified as having functional limitations or a disability-related diagnosis. Four disability groups were defined: children with a) developmental disabilities only, b) intellectual disabilities only, c) intellectual disabilities and developmental disabilities, and d) other disabling conditions or impairments. These groups were described in terms of each group's ability to perform the social roles expected of children (e.g., relationships with family and friends, participation in school and other activities). Summary statistics are provided on demographic characteristics, special education and other services, impact of the child's disability on the family, and perceptions of disability. Findings from the Personal Adjustment and Role Skills Survey (PARS) questions are also included. In this issue the term "intellectual disability" (ID) is used in place of "mental retardation" (MR) in response to the growing commitments to avoid using the latter term because of the stigma associated with that label. The name of this publication has been changed for the same reason. (Publication Date: August 01, 2002)

Staff: Lynda L Anderson, Sheryl A Larson

Feature Issue on Violence Against Women with Developmental or Other Disabilities (Fall 2000)

A newsletter issue examining violence as it impacts women with developmental and other disabilities - what we know, what we don't know, and what needs to be done to prevent it and to help women recover from it. A major civil rights, quality of life, and health issue for women with developmental and other disabilities is the presence of violence in their lives. Women with disabilities experience the highest rate of personal violence - violence at the hands of spouses, partners, boyfriends, family members, caregivers, and strangers - of any group in our society today. Yet, they are often invisible in the crime statistics, frequently find community services such as domestic and sexual violence programs inadequately prepared to fully understand and meet their needs, face disability service systems that don't clearly see and effectively respond to the violence, and are all too commonly devalued and unsupported because of societal prejudice. This *Impact* offers strategies and ideas for bringing together disability service providers, sexual and domestic violence programs, law enforcement and the justice system, policymakers, researchers, and women with disabilities to address these issues, in the hope that this epidemic will soon end. (Publication Date: December 01, 2000)

Staff: Vicki D Gaylord, Wendie H Abramson