Housing access


In-Home and Residential Long-Term Supports and Services for Persons with Intellectual or Developmental Disabilities: Status and Trends through 2013 (2016)

A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2013. It is based on an annual nationwide survey of directors of state intellectual and developmental disability agencies and large state residential facilities conducted by the National Residential Information Systems Project (RISP), now in its 30th year at the Research and Training Center on Community Living. The report presents data on individualized and congregate settings, utilization and expenditures for Medicaid's Home and Community-Based Waiver (HCBS) and Medicaid's Intermediate Care Facilities for Individuals with Intellectual Disabilities program, national longitudinal trends in the utilization of and expenditures for long-term services and supports, and services and supports provided in state-operated facilities serving 16 or more people with intellectual and developmental disabilities. The RISP data are available in several formats. The annual reports can be downloaded in [PDF format](https://risp.umn.edu/publications). The online version of the latest report contains short reports that highlight specific findings from the overall report; they are available online in an [interactive, data visualization format](https://risp.umn.edu/#F2-2) that allows users to quickly access state data and presents comparisons between states in a visual format. (Publication Date: March 08, 2016)

Staff: Libby J Hallas-Muchow, Amy S Hewitt, Sheryl A Larson, Sandra L Pettingell

Feature Issue on the ADA and People with Intellectual, Developmental, and Other Disabilities (Winter 2015)

A newsletter issue marking the 25th anniversary of the Americans with Disabilities Act (ADA). In this *Impact* are articles by individuals with disabilities, families, advocates, service providers, researchers, and others talking about how the ADA has made a difference in their lives, the lives of their loved ones, and in our nation. At the same time, this *Impact* also focuses on ways in which the ADA hasn't fully addressed a number of the barriers faced by people with intellectual and developmental disabilities as they seek equal opportunity and inclusion in their communities. By sharing this range of perspectives, the issue encourages readers to both pause to celebrate the anniversary of the ADA as a turning point in our nation's journey, and continue traveling toward that horizon of full inclusion we have yet to reach. Complementing the *Impact* are over 40 short video clips posted on the Self-Advocacy Online Web site [(http://www.selfadvocacyonline.org/stories)](http://www.selfadvocacyonline.org/stories) of the Research and Training Center on Community Living in which people with disabilities talk about the importance and meaning of the ADA for them. (Publication Date: March 26, 2015)

Staff: Vicki D Gaylord, Amy S Hewitt, Clifford L Poetz

Understanding Community Poverty, Housing, and Disability (October 2014)

A brief aiming to provide policy makers, advocates, and researchers a tool to better understand the pervasiveness of poverty affecting people with disabilities, both locally and across the nation. By providing detailed comparisons across every county in the nation using an array of online, interactive visual features, the impact of poverty on people with and without disabilities is detailed in meaningful ways, especially the relationship between poverty and housing. Among the findings, the brief shows that poverty affects people with disabilities at much higher rates across the vast majority of U.S. counties, and these poverty rates have a direct relationship with local housing indicators (Publication Date: October 01, 2014)

Staff: Kelly Nye-Lengerman LGSW

FINDS [2010] National Survey (2011)

A report covering the national Internet survey that The Arc of the United States conducted in 2010 that aimed to capture the perspectives of people with intellectual and developmental disabilities (ID/DD) and their family caregivers. The [Family and Individual Needs for Disability Supports (FINDS)](http://www.thearc.org/page.aspx?pid=3212) survey focused on issues including educational, housing, employment and support needs of people with ID/DD and their families. More than 5,287 family respondents participated in the survey; of these, three-quarters shared their home with a person with ID/DD. Overall, 95% of respondents were parents, siblings, children, grandparents or other relatives of a person with ID/DD. (Publication Date: May 01, 2011)

Staff: Lynda L Anderson, Sheryl A Larson

Collaborators: The Arc of the United States

Quality Mall (2004 - Present)

An interactive database providing an online clearinghouse of over 3,500 resources from around the country related to person-centered services and supports for persons with intellectual and developmental disabilities. For use by individuals with disabilities, families, advocates, government officials, and service providers, it covers a wide variety of topical areas related to community participation and inclusion, and quality of life. Quality Mall is managed by the Institute's Research and Training Center on Community Living. (Publication Date: January 01, 2004)

Staff: Claire Cunningham, Angela N Amado, Julie E Kramme, John G Smith

Through Asking the Right Questions... You Can Reach Your Destination (1999)

A pocket guide containing questions for families and persons with disabilities to ask as they interview residential service providers and decide which are best suited to meet their support needs. (Publication Date: January 01, 1999)

Staff: Brian H Abery, John G Smith