Adolescents and young adults

Projects

College of Direct Support

Offers a nationwide, online, competency-based training curriculum to enhance the skills and knowledge of Direct Support Professionals (DSPs), frontline supervisors, and managers supporting individuals with disabilities in community settings. CDS is offered in partnership with Elsevier, a world-leading provider of scientific, technical and medical information, through Direct Course, which is a suite of online curricula for people providing services to individuals with disabilities that includes CDS and other curricula developed at other universities.

Staff: Kristin Dean, Shawn C Lawler, Amanda Ryan, Amy S Hewitt, Macdonald M Metzger, Claire E Benway, Susan N ONell, Nancy J McCulloh, Merrie L Haskins, Kelly Nye-Lengerman LGSW, Jody Hofer Van Ness, Nathan A Perry, Jerry W Smith, Sheryl A Larson, Jennifer A Hall-Lande, Connie J Burkhart

Collaborators: Elsevier

History of Leadership in Developmental Disabilities: A Wiki Project

Uses Web and Wiki technology to collect, preserve, and share the history of leadership in the developmental disabilities field over the past 150 years, and pass on to future leaders the stories of how we got to where we are today. The project is creating an online history course and repository documenting the role of leadership and leaders in generating the ideas, movements, and programs that have been foundational to the developmental disabilities field, and using Wiki technology it will engage others in contributing to the multimedia content of the history course.

Staff: John D Westerman, Shawn C Lawler, Jerry W Smith

Collaborators: MENTOR Network Charitable Foundation

Profiles of Transformation Case Studies

Conducts six annual case studies of exemplary initiatives in transformation of community living or employment supports, and two annual case studies of exemplary Direct Support Professional workforce development initiatives. The National Alliance for Direct Support Professionals and the Institute's Research and Training Center on Community Living (RTC) will present "Moving Mountains" Awards for initiatives in Direct Support workforce development at periodic Reinventing Quality conferences.

Staff: Amy S Hewitt, Pamela M Walker, Sheryl A Larson

Collaborators: Center on Human Policy, Syracuse University, National Alliance for Direct Support Professionals

QualityMall.org Web Site on Person-Centered Services for Persons with Developmental Disabilities

Provides resources and information on leading-edge, person-centered supports for use by individuals with disabilities, families, advocates, government officials, and service providers, in a wide variety of topical areas from across the country.

Staff: Kristin Dean, John D Westerman, Amy S Hewitt, Claire Cunningham, Roger Stancliffe, Nancy J McCulloh, Beth E Fondell, Angela N Amado, Jerry W Smith, Sheryl A Larson, John G Smith

Collaborators: National Association of State Directors of Developmental Disabilities Services, Human Services Research Institute

Self-Advocacy Online: Research and Development to Bridge the Digital Divide

Develops a model for making Web sites accessible for people with intellectual and related cognitive disabilities, and launches an educational and networking Web site for teens and adults with intellectual and other developmental disabilities targeted at those who participate in organized self-advocacy groups.

Staff: John D Westerman, Shawn C Lawler, Clifford L Poetz, Mark R Olson, Jeffrey A Nurick, Jerry W Smith, John G Smith, Connie J Burkhart

Collaborators: Self-Advocates Minnesota, HASTAC Initiative, MacArthur Foundation

FISP: Supporting Individuals and Families Information Systems Project

Establishes and refines a comprehensive program of annual data collection from states on family support, and conducts longitudinal data analysis, policy studies, and dissemination activities to better understand and promote effective supports for families and individuals with intellectual and/or developmental disabilities (IDD) who direct their own support. The data gathered will be used to help federal and state agencies understand the current status and emerging trends in supporting families and individuals with IDD living in homes of their own or with family members (including consumer direction). It will also be used to compare and contrast services and expenditures targeting the person with IDD versus those targeting the family members with whom they reside, and to compare services for children versus services for adults with IDD.

Staff: Kristin Dean, Amy S Hewitt, John N Reagan, Heidi Eschenbacher, Yoshiko Kardell, Lynda L Anderson, Sarah E MapelLentz, Sheryl A Larson, Sandra L Pettingell

Collaborators: National Association of State Directors of Developmental Disabilities Services, Human Services Research Institute

PROMISE Technical Assistance Center

Implements and completes the evaluation activities for the AUCD PROMISE (Promoting the Readiness of Minors in Supplemental Security Income) Technical Assistance Center, including evaluation consulting and design, instrumentation development, data collection process implementation, and data analysis and reporting. The Technical Assistance (TA) Center will also conduct technical assistance at demonstration sites. The purpose of the TA Center is to: • Improve skills of State and local personnel to support partnerships among agencies; • Improve implementation of interventions for model demonstration project (MDP) Supplemental Security Income recipients and their families; • Increase knowledge that supports training to the families of participating children; • Improve methods of developing and implementing a plan for conducting a formative evaluation of each MDP activity and model; and, • Improve methods for collecting data and the capacity to track and manage MDP information. PROMISE is a joint initiative of the U.S. Department of Education, the U.S. Social Security Administration, the U.S. Department of Health and Human Services, and the U.S. Department of Labor.

Staff: Amy Gunty, Kelly Nye-Lengerman LGSW