Community supports and services

Products

Feature Issue on the Justice System and People with Intellectual, Developmental, and Other Disabilities (Spring 2017)

An issue in the *Impact* series that discusses the unique and serious challenges people with intellectual, developmental, and other disabilities often face when involved with the juvenile and criminal justice systems. Justice professionals - as well as disability professionals, people with disabilities, and their families - will find this issue of *Impact* filled with leading-edge articles that help them work together to address those challenges and support equal access to justice for all. (Publication Date: June 23, 2017)

Staff: Vicki D Gaylord, David R Johnson PhD

In-Home and Residential Long-Term Supports and Services for Persons with Intellectual or Developmental Disabilities: Status and Trends through 2014 (2017)

A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2014. It is based on an annual nationwide survey of directors of state intellectual and developmental disability agencies and large state residential facilities conducted by the National Residential Information Systems Project (RISP) at the Research and Training Center on Community Living. The report presents data on individualized and congregate settings, utilization and expenditures for Medicaid's Home and Community-Based Waiver (HCBS) and Medicaid's Intermediate Care Facilities for Individuals with Intellectual Disabilities program, national longitudinal trends in the utilization of and expenditures for long-term services and supports, and services and supports provided in state-operated facilities serving 16 or more people with intellectual and developmental disabilities. (Publication Date: April 25, 2017)

Staff: Libby J Hallas-Muchow, Amy S Hewitt, Heidi Eschenbacher, Lynda L Anderson, Sarah E MapelLentz, Sarah L Hollerich, Sheryl A Larson, Sandra L Pettingell

Valuing Lives: Wolf Wolfensberger and the Principle of Normalization (2016)

A film documenting the social paradigm shift triggered by Wolf Wolfensberger, a professor and change agent who, in the early 1970s, popularized and expanded the principle of normalization of people with disabilities into a framework for community inclusion. People are often judged according to how they conform to commonly-held beliefs of what is normal - normal appearance, behavior, ability. And those deemed "abnormal" can be considered undeserving of common respect, dignity, and even basic rights. For many with intellectual and developmental disabilities, this has meant segregation, isolation, and exclusion, with little or no opportunity to access the good things in life. Through archival images and footage, and dozens of interviews, *Valuing Lives* explores the principle of normalization, an idea originating in Scandinavia that challenged fundamental assumptions about people with intellectual disabilities, and the iconoclastic professor whose writings and intense workshops trained thousands of human services professionals in the theory and practice of this idea. This brought about a sea change in thinking at a time when it was considered normal to warehouse nearly 200,000 Americans with intellectual disabilities in large institutions. Wolfensberger helped change the conversation from institutional reform to rethinking society's assumptions of disability and the role of human services. There are still institutions for people with intellectual disabilities, and some voices are calling for new, segregated communities where, it is believed, they will be safer "with their own kind." It is time for a new generation of leaders to rediscover the principle of normalization. (Publication Date: April 05, 2016)

Staff: Jerry W Smith

Collaborators: Institute on Disabilities, Temple University [Philadelphia, PA]

In-Home and Residential Long-Term Supports and Services for Persons with Intellectual or Developmental Disabilities: Status and Trends through 2013 (2016)

A report describing the status of, and trends in, long-term supports and services for people with intellectual or developmental disabilities in the U.S. on June 30, 2013. It is based on an annual nationwide survey of directors of state intellectual and developmental disability agencies and large state residential facilities conducted by the National Residential Information Systems Project (RISP), now in its 30th year at the Research and Training Center on Community Living. The report presents data on individualized and congregate settings, utilization and expenditures for Medicaid's Home and Community-Based Waiver (HCBS) and Medicaid's Intermediate Care Facilities for Individuals with Intellectual Disabilities program, national longitudinal trends in the utilization of and expenditures for long-term services and supports, and services and supports provided in state-operated facilities serving 16 or more people with intellectual and developmental disabilities. The RISP data are available in several formats. The annual reports can be downloaded in [PDF format](https://risp.umn.edu/publications). The online version of the latest report contains short reports that highlight specific findings from the overall report; they are available online in an [interactive, data visualization format](https://risp.umn.edu/#F2-2) that allows users to quickly access state data and presents comparisons between states in a visual format. (Publication Date: March 08, 2016)

Staff: Libby J Hallas-Muchow, Amy S Hewitt, Sheryl A Larson, Sandra L Pettingell

Employment Policy: How Does That Work? (#2) (2016)

A video following a question-and-answer format, in plain and simple language from self-advocates and policy staff about changes in employment policy and services. The target audiences are self-advocates and families. (Publication Date: March 02, 2016)

Staff: Kelly Nye-Lengerman LGSW, Jerry W Smith

Long-term supports and services for people with intellectual and developmental disabilities (2016)

A video and an [accompanying brief](http://rtc.umn.edu/nationalgoals/docs/Long-Term_Supports_and_Services_for_People_with_IDD.pdf) outlining long-term supports and services for people with intellectual and developmental disabilities. A researcher provides a short presentation. (Publication Date: March 01, 2016)

Staff: Jerry W Smith

Services for People with Intellectual and/or Developmental Disabilities in the U.S. Territories (May 2015)

A report representing an expansion of the data collection activities mandated by a 2012 Administration of Intellectual and Developmental Disabilities (AIDD) Funding Opportunity Announcement (FOA). Prior to 2012, the AIDD funded data projects, Access to Integrated Employment, Family and Individual Information Systems project (FISP), Residential Information Systems Project (RISP) and the State of the States in Developmental Disabilities only collected data from the 50 states and the District of Columbia. The 2012 FOA requested that three of the AIDD data projects work together to include the five U.S. Territories (American Samoa and the Commonwealth of the Northern Marianas Islands, Guam, Puerto Rico and the Virgin Islands) in their data collection and analysis efforts. This summary represents the first step to describe the services for people with intellectual and developmental disabilities and their families in the territories. While the information may have limitations in the comparability to the rest of the nation, AIDD believes that it is important to begin data collection, tracking and analysis to increase opportunities to improve self-determination, independence, productivity, integration and inclusion of people with IDD into their communities in the U.S. Territories. (Publication Date: May 01, 2015)

Collaborators: Institute for Community Inclusion, University of Massachusetts Boston, Research and Training Center on Community Living, State of the States in Developmental Disabilities

Feature Issue on the ADA and People with Intellectual, Developmental, and Other Disabilities (Winter 2015)

A newsletter issue marking the 25th anniversary of the Americans with Disabilities Act (ADA). In this *Impact* are articles by individuals with disabilities, families, advocates, service providers, researchers, and others talking about how the ADA has made a difference in their lives, the lives of their loved ones, and in our nation. At the same time, this *Impact* also focuses on ways in which the ADA hasn't fully addressed a number of the barriers faced by people with intellectual and developmental disabilities as they seek equal opportunity and inclusion in their communities. By sharing this range of perspectives, the issue encourages readers to both pause to celebrate the anniversary of the ADA as a turning point in our nation's journey, and continue traveling toward that horizon of full inclusion we have yet to reach. Complementing the *Impact* are over 40 short video clips posted on the Self-Advocacy Online Web site [(http://www.selfadvocacyonline.org/stories)](http://www.selfadvocacyonline.org/stories) of the Research and Training Center on Community Living in which people with disabilities talk about the importance and meaning of the ADA for them. (Publication Date: March 26, 2015)

Staff: Vicki D Gaylord, Amy S Hewitt, Clifford L Poetz

Supporting Individuals with Intellectual or Developmental Disabilities and their Families: Status and Trends Through 2012 (2014)

A technical report describing results from a survey of state intellectual and developmental disabilities (IDD) agencies for FY 2012 on the status and trends of long-term supports and services for people with IDD that focuses on supports provided in individualized settings (the home of a family member, a person's own home, a host home or foster family setting or group homes shared by three or fewer people with IDD). (Publication Date: September 11, 2014)

Staff: Libby J Hallas-Muchow, Amy S Hewitt, Yoshiko Kardell, Lynda L Anderson, Sheryl A Larson, Sandra L Pettingell

Active Support: People Fully Engaged in Life (2014)

A DVD providing an overview of Active Support -- how it is implemented and the kind of training involved to make it successful. Active Support is an organizational intervention that enables Direct Support Professionals in community settings to effectively support the engagement of persons with intellectual or developmental disabilities (ID/DD) throughout their day and in their communities. The DVD includes a long version (24:12) and short version (5:30) of the program. Both programs are closed captioned. (Publication Date: September 04, 2014)

Staff: Jerry W Smith

Collaborators: University of Sydney [Australia], Deakin University [Australia]

Residential Setting and Individual Outcomes: An Assessment of Existing National Core Indicators Research (July 2014)

A brief providing states with information to help their new policy and service developments comply with regulatory criteria that the Centers for Medicaid and Medicare Services specified in March 2014 regarding the character and location of residential services for recipients of Home and Community-Based Services waivers and state plan services. States must evaluate existing services to ensure such programs afford individuals with disabilities the same access to the community as persons without disabilities. This *Policy Research Brief* investigates the relationship of residential setting and individual outcomes for people with intellectual and developmental disabilities who use public programs by analyzing the findings of all peer reviewed studies using the National Core Indictors, a state system-level performance and outcome research program. Findings show that, overall, people living in smaller settings, such as their own home, a family or foster home, or small agency home experienced better individual outcomes than those living in larger settings. This brief displays those findings using an array of online, interactive visual features. A PDF version of each section of the brief is available from a link at the end of the relevant Web page. (Publication Date: July 01, 2014)

Feature Issue on Stories of Advocacy, Stories of Change from People with Disabilities, Their Families, and Allies (1988-2013) (2014)

A newsletter issue featuring then-and-now personal stories from individuals with disabilities, their families, and allies that provide a snapshot of how the disability rights movement has touched individual lives over the past 25 years. This 25th anniversary issue of *Impact* brings together personal stories published in its pages between 1988-2010, and pairs them with new stories from those same individuals and families that bring readers up-to-date on their lives today. Through these stories, plus an interview with the Institute's founding director Bob Bruininks, this *Impact* recognizes the tenacity, courage, and vision of those working to bring about progress toward full citizenship and community inclusion for people with disabilities in the U.S. (Publication Date: May 09, 2014)

Staff: Vicki D Gaylord

Employment First Across the Nation: Progress on the Policy Front (March 2014)

A brief presenting Employment First across the nation through an array of online, interactive visual features that allow users to investigate the various Employment First policy approaches that states have implemented over the last decade. Employment First policies are spreading across the country as a mechanism to improve employment support systems and outcomes for people with disabilities. This new *Policy Research Brief* connects readers with the actual policies in states and additional resources to advance employment of people with disabilities. (Publication Date: March 01, 2014)

Collaborators: Association of People Supporting EmploymentFirst

Research and Training Center on Community Living (RTC-CL) website (2014)

A website presenting the Research and Training Center on Community Living (RTC-CL), a center that conducts a wide range of research, training, and technical assistance and dissemination projects related to community supports under its center grant and related project funding. The RTC-CL is NIDILRR's national center on community living and participation for persons with intellectual and developmental disabilities. RTC-CL is a center within ICI. (Publication Date: January 01, 2014)

Staff: Kristin Dean

State of the Science: Theories, Concepts, and Evidence Guiding Policy and Practice in Community Living and Participation for People with Intellectual Disabilities (2013)

A set of online video presentations from the July 2012 conference, State of the Science: Outcomes for People with Intellectual and Developmental Disabilities in Halifax, Nova Scotia. Experts in their fields discuss the most influential theories, principles, and "big ideas" that shape policy and practices in community supports for people with intellectual or developmental disabilities around 9 topical areas: 1. Community participation and social inclusion 2. Employment and economic self-sufficiency 3. Family support 4. Health and wellness 5. Methodological issues 6. Outcome data 7. Predictors of outcomes 8. Quality of life indicators 9. Self-determination The videos also include discussions by self-advocates and other stakeholders on many of the topics. (Publication Date: June 03, 2013)

Staff: Kristin Dean, Shawn C Lawler, Jerry W Smith

National Frontline Supervisor Competencies (April 2013)

A nationally validated set of 11 competency areas, known as the National Frontline Supervisor Competencies, guiding the work of frontline supervisors in the direct support workforce. (Publication Date: April 03, 2013)

Staff: Amy S Hewitt, Sheryl A Larson

Frontline Supervisor Structured Behavioral Interview Questions (April 2013)

A set of behavioral and situational interview questions gauging the knowledge of external frontline supervisor candidates about the 11 competencies identified in the *National Frontline Supervisor Competencies*. For internal candidates, refer to the *Frontline Supervisor Assessment*. (Publication Date: April 03, 2013)

Staff: Amy S Hewitt, Sheryl A Larson

Frontline Supervisor Assessment (April 2013)

A test helping frontline supervisors and frontline supervisor candidates to evaluate their current performance level and create a self-development plan. Known as the Frontline Supervisor Assessment, it is based on the 11 competencies identified in the *National Frontline Supervisor Competencies*. (Publication Date: April 03, 2013)

Staff: Amy S Hewitt, Sheryl A Larson

A Report on Early Intervention Services for Minnesota's Children with Autism Spectrum Disorders (2012)

A report summarizing the activities and findings of a project funded by the Minnesota Department of Human Services (DHS), and conducted by the University of Minnesota's Research and Training Center on Community Living (RTC), to examine early intervention services for children with autism spectrum disorder (ASD). For this project, the RTC convened and facilitated an ASD Advisory Council of 40 Minnesotans to gather diverse perspectives related to early intervention services for children with ASD; conducted key stakeholder interviews with an additional 24 Minnesotans to gather more diverse perspectives related to early intervention services for children with ASD; and reviewed and summarized the ASD plans and funding strategies of the State of Minnesota and 38 other States to identify commonalities in approaches to early intervention and effective early intervention practices. This report provides a summary of the information gathered from stakeholders and the States, as well as implications of the findings, and is intended to inform decision-making related to early intervention services for children with ASD. An executive summary of the report is available at [http://ici.umn.edu/products/docs/ASD_Early_Intervention_Exec_Summary.pdf](http://ici.umn.edu/products/docs/ASD_Early_Intervention_Exec_Summary.pdf). (Publication Date: December 31, 2012)

Staff: Amy S Hewitt, Barbara A Kleist, Anab A Gulaid, Jennifer A Hall-Lande

Self-Advocacy Online (2012-Present)

A multimedia resource providing information important to people with intellectual and developmental disabilities that is accessible to all. The content is translated into understandable language and includes videos, interactive lessons, and engaging graphics. Users can: * Explore lesson modules on key topics in self-advocacy. * Learn about research findings that are important to people with disabilities in an accessible format. * View stories from other self-advocates and hear what they have to say about key topics in self-advocacy. * List self-advocacy groups and find self-advocacy groups across the United States. (Publication Date: June 01, 2012)

Staff: John D Westerman, Shawn C Lawler, Mark R Olson, Jerry W Smith, John G Smith, Connie J Burkhart

Collaborators: The Arc of the United States

A National Review of Home and Community Based Services (HCBS) for Individuals with Autism Spectrum Disorders (December 2011)

A brief reporting findings of a study that gathered data in 2009-2010 about how people with autism spectrum disorders (ASD) are being served across states in Home and Community Based Services (HCBS) Medicaid waiver programs and discussing implications for providing services and supports for this growing population in the future. Autism spectrum disorders are among the fastest-growing developmental disability diagnosis in the U.S. This increased diagnosis, coupled with the large number of children with ASD now reaching adulthood, highlights the need to learn more about the services and supports that are currently available for adults with ASD, and consider those that will be needed throughout their adult lifespan. The focus in this issue of *Policy Research Brief* is on the extent to which states have included people with ASD in their Home and Community Based Services Medicaid waiver programs, the programs that have, in recent decades, been the primary source of funding support for individuals with intellectual disabilities and related conditions (such as ASD, cerebral palsy, and others) who are living in the community. Historically these systems were designed to primarily meet the needs of people with intellectual disabilities, and they present certain challenges when looked to as a source for specialized funding and support services for adults with ASD. (Publication Date: December 19, 2011)

Staff: Amy S Hewitt, Jennifer A Hall-Lande

FAST Family Support Survey [2010]: National Results (2011)

A report summarizing the results of the FAST Family Support Survey, a 2010 national Internet survey of 2,416 parents or relatives of children and youth ages 11 years to 39 years with disabilities from 54 states or U.S. territories. The survey was conducted as part of the Family Advocacy and Support (FAST) project at PACER Center, a project designed to develop and test resources to assist families of youth and young adults with disabilities through the transition from school to adult life. Its curriculum development and training components focused specifically on people who were ethnically and socioeconomically diverse. This report describes key information needs, unmet service needs, and service quality for youth and young adults with disabilities in transition from school to adulthood (defined for this effort as ages 12 to 22 years). (Publication Date: March 15, 2011)

Staff: Sheryl A Larson

Collaborators: PACER Center

Leadership in the History of the Developmental Disabilities Movement Wiki (2011)

This interactive multi-media database profiles key leaders in the developmental disabilities movement. Video presentations include features of effective leadership and styles of leadership required for sustainable change. Supporting content provides historical trends, public and professional perceptions, and the evolving context of services available to people with disabilities. The wiki format allows users to add and modify content. (Publication Date: March 01, 2011)

Staff: John D Westerman, Shawn C Lawler, Jerry W Smith

Agency Factors and Structures Which Increase Successful Outcomes in Community Participation and Socially Valued Roles (2010)

A report documenting the results of a five-year project with Lutheran Social Services in Minnesota to impact the social relationships which individuals with intellectual/developmental disabilities (ID/DD) have with other members of their communities. The project identified agency factors that influence why some individuals with ID/DD experience more community relationships and social inclusion than others served by the same agency. The report summarizes the results of the project in three areas: friendships, community group/organization membership, and valued community social roles. (Publication Date: July 01, 2010)

Staff: Angela N Amado

Quality Supports, Quality Lives (2010)

A DVD illustrating the need for and importance of the work of Direct Support Professionals (DSP), while also highlighting some of the barriers faced by DSPs, such as low pay, lack of affordable health insurance, and insufficient training. The Bureau of Labor Statistics projects that one million new DSPs will be needed by 2016. DSPs support individuals with disabilities, people with chronic health conditions, and older adults so they can live, work and participate fully in their communities. Direct Support Professional job titles vary, and include in-home support worker, personal assistant, home health aide, job coach, direct support worker, and independent living skills instructor. These supports are essential across the lifespan to ensure that people who rely on supports can live healthy, safe lives. However the barriers lead to high turnover among DSPs, creating a workforce crisis that, combined with the aging of the nation, needs immediate attention from our nation's policymakers. The audience for this video is provider agencies, DSP networks, disability organizations, and those interested in improving the workforce. A portion of the proceeds from this video supports the National Alliance for Direct Support Professionals (NADSP). (Publication Date: January 01, 2010)

Staff: Jerry W Smith

RTC Media website (2015)

A website showcasing films about people with disabilities and those who provide support. Also describes the film-making services available through RTC Media. (Publication Date: January 01, 2010)

Staff: Jerry W Smith

Family Support Services in the United States: 2008 (May 2009)

A brief providing a state-by-state summary of services supporting individuals with disabilities living in the family home. Data presented are based on the State of the States in Developmental Disabilities Project, a longitudinal study of public financial and programmatic trends in intellectual and developmental disabilities services and supports in the states. The State of the States project is funded in part as a Data Collection Project of National Significance from the Administration on Developmental Disabilities, by the Department of Psychiatry of the University of Colorado School of Medicine, and by the Coleman Institute for Cognitive Disabilities, University of Colorado. (Publication Date: May 01, 2009)

Staff: Sheryl A Larson

Twin Cities and Zambia Disability Connection - Final Report (2009)

A report providing an overview of the Twin Cities and Zambia Disability Connection, outlining the project's preliminary outcomes, and identifying ongoing needs for individuals with disabilities in Zambia, which may provide the focus for future work. The project was created to meet an acute need to develop more community services and supports for people with disabilities in Zambia. It is a collaboration involving the Institute on Community Integration, Arc Greater Twin Cities, Opportunity Partners, Fraser, Inc., and government and community leaders in Zambia. (Publication Date: January 01, 2009)

An Independent Assessment of the Region 10 Quality Assurance Commission Voice Review Program (2008)

A report on the VOICE program, a person-centered quality assurance system that emphasizes self-determination and involves community volunteers, people with disabilities, and professionals to determine the quality of services provided. VOICE was created by the Region 10 Quality Assurance Commission in southeast Minnesota. (Publication Date: April 16, 2008)

Staff: Jerry W Smith, John G Smith

Final Report: National Training Institute for Frontline Supervisors (2007)

A report describing a project that refined, tested, and delivered a "Train-the-Trainer" model to the National Training Institute for Frontline Supervisors. The project also provided a distributed learning, technical assistance and consulting model to assist community human service employers, families and consumers nationwide to recruit, retain, and train direct support professionals and frontline supervisors. (Publication Date: September 30, 2007)

Staff: Amy S Hewitt, Nancy J McCulloh, Sheryl A Larson

National Validation Study of Competencies For Frontline Supervisors and Direct Support Professionals (2007)

A report summarizing a study of the competencies needed by Frontline Supervisors (FLS) and Direct Support Professionals (DSPs) supporting people with intellectual and developmental disabilities. It includes a description of training needs, and timing of training for FLS and DSPs. Using survey methodologies, the study validated nationally the results of two comprehensive Minnesota analyses of competencies needed by DSPs and FLS, extending the existing analyses by sampling DSPs, FLS and managers in 77 agencies in five states. (Publication Date: April 01, 2007)

Staff: Amy S Hewitt, Susan N ONell, Sheryl A Larson

You Know That it's Got to be Dedication That I am Still Here: The Experiences of Direct Support Professionals During Hurricanes Katrina and Rita, and Aftermath (2007)

A report describing the experiences of Direct Support Professionals (DSPs) who worked in New Orleans between August 2005 and May 2006 - before, during, and after Hurricanes Katrina and Rita. In 2006, the University of Minnesota was asked to conduct a series of interviews and focus groups with staff from two programs of the Volunteers of America (VOA) of Greater New Orleans: Supported Living Services (offering family and semi-independent living supports to adults and children with disabilities) and Community Living Services (offering group homes for adults and children with developmental disabilities). The purpose of the interviews was to learn what happened during the hurricanes, what worked and didn't work for DSPs and those they supported in relation to the evacuation, why the DSPs returned to New Orleans, and DSP recommendations for future disaster preparation and response. (Publication Date: March 31, 2007)

Staff: Amy S Hewitt, Sheryl A Larson, Jennifer A Hall-Lande

Collaborators: Volunteers of America of Greater New Orleans

We Get It Done: Working as a Direct Support Professional (2007)

A video about and for Direct Support Professionals (DSPs) -- service professionals entrusted with the immense responsibility of assisting people with intellectual and other developmental disabilities to live rich and fulfilling lives. The expectations of DSPs are demanding, complex, and always evolving. *We Get it Done: Working as a Direct Support Professional* clearly illustrates this everyday work for New Yorkers in a variety of residential and vocational settings and provides first-person stories and advice from real DSPs. Produced by RTC Media for the New York State Association of Community and Residential Agencies. (Publication Date: January 15, 2007)

Staff: Jerry W Smith

Higher Ground: The Dedication of Direct Support Professionals During and After Hurricanes Katrina and Rita (Brief) (2007)

A brief summarizing the report, *You Know that it's Got to be Dedication that I am Still Here: The Experiences of Direct Support Professionals During Hurricanes Katrina and Rita, and the Aftermath*. It describes the experiences of Direct Support Professionals (DSPs) who worked in New Orleans between August 2005 and May 2006 - before, during, and after Hurricanes Katrina and Rita. The full length report is available at [http://ici.umn.edu/products/docs/NOLAFinalReport.pdf](http://ici.umn.edu/products/docs/NOLAFinalReport.pdf). (Publication Date: January 01, 2007)

Staff: Amy S Hewitt, Sheryl A Larson, Jennifer A Hall-Lande

Collaborators: Volunteers of America of Greater New Orleans

Higher Ground: The Dedication of Direct Support Professionals During and After Hurricanes Katrina and Rita (DVD) (2007)

A documentary film telling the stories of some of the heroic Direct Support Professionals from New Orleans who, despite long hours, low pay, and tremendous stress and trauma, continued to provide support services during and after the storms while often not knowing the fate of their own families. For months, these dedicated women and men put others before themselves, providing care and support with improvised resources. For these heroes of New Orleans, being a direct Support Professional is much more than a job. A preview of the 47-minute DVD is online at [www.highergroundthemovie.org](http://rtc.umn.edu/rtcmedia/higherground/). (Publication Date: January 01, 2007)

Staff: Jerry W Smith

Collaborators: Volunteers of America of Greater New Orleans

Characteristics of Aging Caregivers in the NHIS-D (July 2006)

A brief summarizing findings from the National Health Interview Survey Disability Supplement conducted by the U.S. Bureau of the Census, National Center on Health Statistics in 1994 and 1995. It examines characteristics and outcomes for family members, ages 55 and older, who shared households with persons with intellectual and/or developmental disabilities (ID/DD) or functional limitations only (FL Only). This brief estimates the population of aging caregivers and presents logistic regressions examining the factors that influence selected outcomes for those caregivers (poor health status and poor mental health status). (Publication Date: July 01, 2006)

Staff: Lynda L Anderson, Sheryl A Larson

Family Support Service in the United States (February 2006)

A brief providing an overview of family support services in the states based on data gathered for the State of the States in Developmental Disabilities Project, a longitudinal study of public financial and programmatic trends in intellectual or developmental disabilities (ID/DD) conducted by the University of Colorado Department of Psychiatry and the Coleman Institute for Cognitive Disabilities, University of Colorado, Boulder. (Publication Date: February 01, 2006)

Staff: Sheryl A Larson

Find, Choose and Keep Great DSPs (2006)

A pair of easy-to-use toolkits helping families and people with disabilities find quality, caring, and committeed Direct Support Professionals (DSPs). There are two different versions of the tookit: one for people with disabilities and one for their family members and support providers. These toolkits, which can be used together or separately, provide: * Information on where in the community individuals and families can find the best DSPs to meet their needs. * Information on how individuals and families choose the best DSP for their needs, including how to develop a realistic job preview. * Information on how to train and support DSPs in the job so they stay longer. * A CD that provides worksheets, sample realistic job previews, and other resources. (Publication Date: January 01, 2006)

Staff: Amy S Hewitt, Nancy J McCulloh

Mothers with Disabilities - Characteristics and Outcomes: An Analysis From the 1994/1995 NHIS-D (December 2005)

A brief summarizing findings from the National Health Interview Survey conducted by the U.S. Bureau of the Census, National Center on Health Statistics in 1994 and 1995. In these years, 202,560 people were surveyed using the National Health Interview Survey Disability Supplement (NHISD), including 140 mothers with intellectual and/or developmental disabilities (ID/DD) and 1,081 mothers with other substantial functional limitations (FL Only). This DD Data Brief examines the characteristics and outcomes for mothers with disabilities and their children, estimates the number of mothers with ID/DD in the U.S. noninstitutionalized population, and examines factors that influence developmental outcomes for both mothers with disabilities and their children. (Publication Date: December 01, 2005)

Staff: Lynda L Anderson, Sheryl A Larson

Status of Institutional Closure Efforts in 2005 (September 2005)

A brief examining and summarizing the research and policy issues that state policymakers may face as they consider whether to increase, reduce, or close institutions in their own states. (Publication Date: September 01, 2005)

Staff: Pamela M Walker, Sheryl A Larson

Costs and Outcomes of Community Services for Persons with Intellectual and Developmental Disabilities (May 2004)

A brief reviewing available research on the costs and outcomes of community service provision for people with intellectual disabilities (or "mental retardation") and developmental disabilities, with a particular emphasis on residential services. It focuses on a number of key issues related not only to public expenditures, but also to funding systems, related policies and regulations, and their impact on service systems, on specific service types, and on service users. (Publication Date: May 01, 2004)

Staff: Vicki D Gaylord, Roger Stancliffe

Direct Support Professional Recruitment Toolkit (2004)

A resource helping human service employers recruit and retain quality Direct Support Professionals (DSPs). This resource provides tools to create an exciting, dynamic recruitment plan, resulting in a large pool of qualified applicants. The toolkit, which may be used by agencies, individuals, families, consortia, and organizations, provides: * Information on how to develop a marketing strategy and recruitment plan that meets each employer's unique needs. * Information on where to find people who make great DSPs. * Samples of effective recruitment tools designed to reach target niche groups. * A CD-ROM (PC/Mac) with templates that can be customized to produce professional, eye-catching materials. (Publication Date: January 01, 2004)

Quality Mall (2004 - Present)

An interactive database providing an online clearinghouse of over 3,500 resources from around the country related to person-centered services and supports for persons with intellectual and developmental disabilities. For use by individuals with disabilities, families, advocates, government officials, and service providers, it covers a wide variety of topical areas related to community participation and inclusion, and quality of life. Quality Mall is managed by the Institute's Research and Training Center on Community Living. (Publication Date: January 01, 2004)

Staff: Claire Cunningham, Angela N Amado, Jerry W Smith, Julie E Dahlof Kramme, John G Smith

Service Use by and Needs of Adults with Functional Limitations or ID/DD in the NHIS-D: Difference by Age, Gender, and Disability (December 2003)

A brief summarizing findings from the National Health Interview Survey on Disability conducted by the U.S. Bureau of the Census, National Center on Health Statistics in 1994 and 1995. It is an extension of the April 2001 MR/DD Data Brief on characteristics of and service use by persons with MR/DD living in their own homes or with family members. This brief re-examines employment services and status, personal supports used and needed, professional and mental health services, previous longterm care services, transportation services, preventative health care, and waiting for services. The new component in this brief is an examination of how service use and needs vary by age (for persons 18-35 years versus persons 36 years and older), gender, and disability group (persons with intellectual and/or developmental disabilities [ID/DD] versus persons with one or more substantial functional limitations who do not meet the criteria of having ID/DD). It uses a series of logistic regressions to examine how the services and support needs vary by age, gender, and disability group after controlling for overall health status, race, and economic status. (Publication Date: December 01, 2003)

Staff: Sheryl A Larson

Health Insurance Coverage and Health Care Experiences of Persons with Disabilities in the NHIS-D (May 2003)

A brief describing the experiences with public and private health insurance coverage for people with functional limitations, people with IDD, and people who do not have IDD or functional limitations, and examining the variations in these outcomes by gender and age. It is based on data collected in 1994 and 1995 through the National Health Interview Survey Disability Supplement (NHIS-D) that collected extensive information about disabilities among the individuals sampled as part of the annual census-based household interview surveys. The NHIS describes demographic characteristics, health status, functional limitations, and supports and services used by persons in the civilian, noninstitutionalized population in the United States. (Publication Date: May 01, 2003)

Staff: Lynda L Anderson, Sheryl A Larson

We Watch the City: Stories in the Shadow of 9/11 (2002)

A documentary video sharing the experiences of New Yorkers with intellectual or other developmental disabilities, and those who support them, in the aftermath of September 11, 2001. The film also looks at the backstory: persons with developmental disabilities as valuable, productive citizens and New Yorkers. (Publication Date: January 01, 2002)

Staff: Jerry W Smith

Characteristics of and Service Use by Persons With MR/DD Living in Their Own Homes or With Family Members (April 2001)

A brief describing people with MR/DD living in the community in terms of basic demographic characteristics, functional and other limitations, residential services history, medical services received, social activities, transportation used, and waiting list status, and comparing people with and without MR/DD in regard to health status and service, functional limitations, major activity status, and school status. It is based on the data from the 1994-95 National Health Interview Survey Disability Supplement (NHIS-D) that collected extensive information about disabilities among the individuals sampled as part of the annual census-based household interview surveys. The NHIS focuses on the civilian, noninstitutionalized population in the United States, describing demographic characteristics, health status, functional limitations, and supports and services used. (Publication Date: April 01, 2001)

Staff: Lynda L Anderson, Sheryl A Larson

The Peer Empowerment Program (PEP): A Complete Toolkit for Planning and Implementing Mentoring Programs Within Community-Based Human Services Organizations (2001)

A planning guide and curriculum for supervisors and agency staff focusing on socialization and skill development for all employees. Includes Program Coordinator Guide, Facilitator Guide, and Learner Guide. (Publication Date: January 01, 2001)

Staff: Amy S Hewitt, Susan N ONell, Sheryl A Larson

Removing the Revolving Door - Strategies to Address Recruitment and Retention Challenges (2001)

A curriculum targeting frontline supervisors and managers regarding the use of effective recruitment, retention, and training strategies. Includes Facilitator Guide and Learner Guide. (Publication Date: January 01, 2001)

Staff: Amy S Hewitt, Susan N ONell, Sheryl A Larson

Feature Issue on Violence Against Women with Developmental or Other Disabilities (Fall 2000)

A newsletter issue examining violence as it impacts women with developmental and other disabilities - what we know, what we don't know, and what needs to be done to prevent it and to help women recover from it. A major civil rights, quality of life, and health issue for women with developmental and other disabilities is the presence of violence in their lives. Women with disabilities experience the highest rate of personal violence - violence at the hands of spouses, partners, boyfriends, family members, caregivers, and strangers - of any group in our society today. Yet, they are often invisible in the crime statistics, frequently find community services such as domestic and sexual violence programs inadequately prepared to fully understand and meet their needs, face disability service systems that don't clearly see and effectively respond to the violence, and are all too commonly devalued and unsupported because of societal prejudice. This *Impact* offers strategies and ideas for bringing together disability service providers, sexual and domestic violence programs, law enforcement and the justice system, policymakers, researchers, and women with disabilities to address these issues, in the hope that this epidemic will soon end. (Publication Date: December 01, 2000)

Staff: Vicki D Gaylord

Through Asking the Right Questions... You Can Reach Your Destination (1999)

A pocket guide containing questions for families and persons with disabilities to ask as they interview residential service providers and decide which are best suited to meet their support needs. (Publication Date: January 01, 1999)

Staff: Brian H Abery, John G Smith