DD Data Brief

A series summarizing analyses of the 1994/1995 National Health Interview Survey-Disability Supplement, conducted by the Institute's Research and Training Center on Community Living.

  • Characteristics of Aging Caregivers in the NHIS-D

    A brief summarizing findings from the National Health Interview Survey Disability Supplement conducted by the U.S. Bureau of the Census, National Center on Health Statistics in 1994 and 1995. It examines characteristics and outcomes for family members, ages 55 and older, who shared households with persons with intellectual and/or developmental disabilities (ID/DD) or functional limitations only (FL Only). This brief estimates the population of aging caregivers and presents logistic regressions examining the factors that influence selected outcomes for those caregivers (poor health status and poor mental health status). (Publication Date: July 01, 2006)

  • Mothers with Disabilities - Characteristics and Outcomes: An Analysis From the 1994/1995 NHIS-D

    A brief summarizing findings from the National Health Interview Survey conducted by the U.S. Bureau of the Census, National Center on Health Statistics in 1994 and 1995. In these years, 202,560 people were surveyed using the National Health Interview Survey Disability Supplement (NHISD), including 140 mothers with intellectual and/or developmental disabilities (ID/DD) and 1,081 mothers with other substantial functional limitations (FL Only). This DD Data Brief examines the characteristics and outcomes for mothers with disabilities and their children, estimates the number of mothers with ID/DD in the U.S. noninstitutionalized population, and examines factors that influence developmental outcomes for both mothers with disabilities and their children. (Publication Date: December 01, 2005)

  • Social Activities of Non-Institutionalized Adults in the NHIS-D: Gender, Age, and Disability Differences

    A follow-up brief to issue 3(1) describing the social activities of adults with intellectual and/or developmental disabilities (ID/DD) using the National Health Interview Survey Disability Supplement(NHIS-D). The main finding of that earlier brief was that the most common social activities for individuals with ID/DD were getting together with friends or neighbors, meeting relatives, and talking on the phone with friends or neighbors. This DD Data Brief takes the next step by comparing social activities of adults with ID/DD to those of adults with other types of disabilities. It also uses inferential statistics to identify factors (including work history) associated with differences in social activity participation. (Publication Date: September 01, 2005)

  • Problems in Defining Mental Retardation and Developmental Disability: Using the National Health Interview Survey

    A brief offering a second look at the 1997-2004 National Health Interview Survey (NHIS) and its usefulness in describing the characteristics and needs of persons with intellectual or developmental disabilities (ID/DD) in the non-institutionalized U.S. population. This issue describes the authors' attempt to create an operational definition of intellectual and developmental disability using the NHIS surveys. (Publication Date: June 01, 2005)

  • Response Patterns Among Adult Respondents with Mental Retardation in the National Health Interview Survey, 1997-2002

    A brief representing a departure from previous issues in the series, which have focused on the characteristics and needs of persons with intellectual or developmental disabilities (ID/DD) in the non-institutionalized U.S. population based on results from the National Health Interview Survey on Disability (NHIS-D) fielded in 1994-1995. This issue presents findings from the later years of the NHIS. It focuses on one of the issues in identifying and describing the characteristics of people with ID/DD in the 1997 NHIS and later, and describes response rate and proxy response issues that disproportionately affect individuals with ID/DD. (Publication Date: July 01, 2004)

  • Gender, Age, and Disability Differences in Functional Limitations for Non-Institutionalized Adults in the NHIS-D

    A brief summarizing findings from the National Health Interview Survey conducted by the U.S. Bureau of the Census, National Center on Health Statistics, in 1994 and 1995, which included a Disability Supplement. The brief examines gender, age, and functional limitations and the relationship between age, functional limitations, and intellectual/developmental disabilities for adults, with a specific focus on adult women. Descriptive population estimates and a series of logistic regressions are used to examine the unique associations with various functional limitations of gender, age, disability, health status, race, and economic status. This brief also examines the relationship between older and younger adults, and differences by gender, disability type, and limitation type. (Publication Date: January 01, 2004)

  • Service Use by and Needs of Adults with Functional Limitations or ID/DD in the NHIS-D: Difference by Age, Gender, and Disability

    A brief summarizing findings from the National Health Interview Survey on Disability conducted by the U.S. Bureau of the Census, National Center on Health Statistics in 1994 and 1995. It is an extension of the April 2001 MR/DD Data Brief on characteristics of and service use by persons with MR/DD living in their own homes or with family members. This brief re-examines employment services and status, personal supports used and needed, professional and mental health services, previous longterm care services, transportation services, preventative health care, and waiting for services. The new component in this brief is an examination of how service use and needs vary by age (for persons 18-35 years versus persons 36 years and older), gender, and disability group (persons with intellectual and/or developmental disabilities [ID/DD] versus persons with one or more substantial functional limitations who do not meet the criteria of having ID/DD). It uses a series of logistic regressions to examine how the services and support needs vary by age, gender, and disability group after controlling for overall health status, race, and economic status. (Publication Date: December 01, 2003)

  • Health Insurance Coverage and Health Care Experiences of Persons with Disabilities in the NHIS-D

    A brief describing the experiences with public and private health insurance coverage for people with functional limitations, people with IDD, and people who do not have IDD or functional limitations, and examining the variations in these outcomes by gender and age. It is based on data collected in 1994 and 1995 through the National Health Interview Survey Disability Supplement (NHIS-D) that collected extensive information about disabilities among the individuals sampled as part of the annual census-based household interview surveys. The NHIS describes demographic characteristics, health status, functional limitations, and supports and services used by persons in the civilian, noninstitutionalized population in the United States. (Publication Date: May 01, 2003)

  • Children with Disabilities: Social Roles and Family Impacts

    A brief using the 1994-1995 Child Disability Follow-Back Survey (DFS) of the National Health Interview Survey (NHIS) to examine the characteristics of children between the ages of 6 and 17 who were identified as having functional limitations or a disability-related diagnosis. Four disability groups were defined: children with a) developmental disabilities only, b) intellectual disabilities only, c) intellectual disabilities and developmental disabilities, and d) other disabling conditions or impairments. These groups were described in terms of each group's ability to perform the social roles expected of children (e.g., relationships with family and friends, participation in school and other activities). Summary statistics are provided on demographic characteristics, special education and other services, impact of the child's disability on the family, and perceptions of disability. Findings from the Personal Adjustment and Role Skills Survey (PARS) questions are also included. In this issue the term "intellectual disability" (ID) is used in place of "mental retardation" (MR) in response to the growing commitments to avoid using the latter term because of the stigma associated with that label. The name of this publication has been changed for the same reason. (Publication Date: August 01, 2002)

  • Functional Limitations of Adults in the U.S. Non-Institutionalized Population: NHIS-D Analysis

    A brief comparing the demographic characteristics, health status, functional limitations, and perceived disability status for adults in three groups who had mental retardation and/or developmental disabilities with those of adults with functional limitations only and those of adults with no substantial functional limitations. It is based on data from the 1994-95 National Health Interview Survey Disability Supplement (NHIS-D) that collected extensive information about disabilities among the individuals sampled as part of the annual census-based household interview surveys. The NHIS focuses on the civilian, non-institutionalized population, describing demographic characteristics, health status, functional limitations, and supports and services used. The authors identified 1,116 adults in the combined 1994/1995 NHIS-D sample as having mental retardation and/or developmental disabilities (MR/DD), estimating that 1,495,183 (+/- 3.2%) non-institutionalized adult Americans meet the criteria for one or both of these categories. They also identified 12,078 adults who had substantial functional limitations in one or more of seven major areas of life activity, but who did not meet the criteria for having MR/DD. They estimate that 15,428,317 (+/- 1.48%) noninstitutionalized adult Americans have substantial functional limitations, but not MR/DD. (Publication Date: October 01, 2001)

  • Demographic Characteristics of Persons with MR/DD Living in Their Own Homes or With Family Members

    A brief describing people with mental retardation and/or developmental disabilities (MR/ DD) living in the community in terms of demographic characteristics and economic status. Those characteristics are analyzed to determine how they are interrelated, and are compared to those of the general population. The data is based on the 1994-95 National Health Interview Survey Disability Supplement (NHIS-D) that collected extensive information about disabilities among the individuals sampled as part of the annual census-based household interview surveys. The NHIS focuses on the civilian, noninstitutionalized population in the United States, describing demographic characteristics, health status, functional limitations, and supports and services used. The authors of this brief identified 3,076 individuals in the combined 1994/1995 NHIS-D sample as having MR/DD, estimating that 3,887,158 (plus or minus 1.9%) non-institutionalized Americans meet the criteria for one or both of these categories, a prevalence rate of 1.49%. An additional 245,720 people with MR/DD are estimated to be living in nursing homes, psychiatric facilities or congregate care (institutional) settings of four or more residents. (Publication Date: June 01, 2001)

  • Characteristics of and Service Use by Persons With MR/DD Living in Their Own Homes or With Family Members

    A brief describing people with MR/DD living in the community in terms of basic demographic characteristics, functional and other limitations, residential services history, medical services received, social activities, transportation used, and waiting list status, and comparing people with and without MR/DD in regard to health status and service, functional limitations, major activity status, and school status. It is based on the data from the 1994-95 National Health Interview Survey Disability Supplement (NHIS-D) that collected extensive information about disabilities among the individuals sampled as part of the annual census-based household interview surveys. The NHIS focuses on the civilian, noninstitutionalized population in the United States, describing demographic characteristics, health status, functional limitations, and supports and services used. (Publication Date: April 01, 2001)

  • Prevalence of Mental Retardation and/or Developmental Disabilities: Analysis of the 1994/1995 NHIS-D

    A brief superseding the first MR/DD Data Brief (Vol.1, No.1) with slightly revised definitions of mental retardation and developmental disabilities and prevalence estimates that incorporate both 1994 and 1995 National Health Interview Survey Disability Supplement data. In 1994 and 1995, the National Health Interview Survey included a Disability Supplement (NHIS-D) that collected extensive information about disabilities among the individuals sampled as part of the annual census-based household interview surveys. The NHIS focuses on the civilian, noninstitutionalized population in the United States. It describes demographic characteristics, health status, functional limitations, and supports and services used. This MR/DD Data Brief describes the development of and revisions to the operational definitions of mental retardation and developmental disabilities based on items in the NHIS-D. It also describes the application of those definitions to estimate the prevalence of mental retardation and developmental disabilities in the noninstitutionalized population of the United States. (Publication Date: April 01, 2000)