NHIS-D Studies

Studies on Persons with Developmental Disabilities in the 1994-1995
Disability Supplement to the National Health Interview Survey
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Overview of RTC NHIS-D Projects and This Site


Annotated Bibliography Announcement - "Statistical Analyses Based on the National Health Interview Survey on Disability: A Bibliography and Summary of Findings".
This annotated bibliography contains a summary of research publications based on original analyses of data from the 1994-1995 National Health Interview Survey on Disability. This bibliography describes 112 articles that were grouped in six categories: methods; assistive technology and personal assistance services; policy issues; populations of special interest; types of disability; and out of scope. Key findings are briefly summarized in each area.
View/Download this Bibliography - (PDF)

The National Health Interview Survey (NHIS) is a household survey that has been conducted by the U.S. Bureau of the Census annually since 1957. It is supported by the National Center for Health Statistics (NCHS). The NHIS focuses on the civilian, non-institutionalized population in the United States. Each year the NHIS randomly samples approximately 48,000 households with 108,000 members from 201 primary sampling units nationally. The NCHS maintains an official NHIS web site.

The Research and Training Center on Community Living (RTC) is involved with various analyses of the National Health Interview Survey on Disability Supplement (NHIS-D) to further knowledge about the lives of persons with developmental disabilities on a range of topics such as:

  • Prevalence of mental retardation and developmental disabilities.
  • Population characteristics.
  • Use of services, devices, and technologies.
  • Social and vocational experiences.
  • Access to medical, health, and personal assistance.
  • Living arrangements.
  • Formal and informal support needs and use.
  • Variations among persons with developmental disabilities in these and other areas that may be associated with age, severity of disability, racial or ethnic background, place of residence, or other factors.
  • In-depth analysis of critical issues such as unserved or underserved individuals waiting for services, characteristics of direct support professionals in in-home settings, and guardianship status for adults with developmental disabilities.

A detailed description of the definitions used for mental retardation and developmental disabilities is available on the definitions page.

Results of these analyses will be disseminated via Data Briefs, conference presentations, journal publications, and fact sheets. Tailored analyses on persons with developmental disabilities will be conducted as requested by federal agencies and other groups.

This research is funded by The National Institute on Disability and Rehabilitation Research (NIDRR), U.S. Department of Education, through a Cooperative Agreement (No. H133A60051) with The Center on Emergent Disability, University of Illinois at Chicago; through a NIDRR Field-Initiated Grant (No. H133G80082) to The Research and Training Center on Community Living at the University of Minnesota; and through support of the RISP project provided by the Administration on Intellectual and Developmental Disabilities (Grant No. 90DN0028/01). Funding for this publication is provided through a NIDRR Cooperative Agreement (No. H133B980047) with the Research and Training Center on Community Living, University of Minnesota.